Muhammed KILINÇ, Çiğdem ÖKSÜZ, Derya GÖKMEN, İpek GÜRBÜZ, Cevher DEMİRCİ, Hatice ABAOĞLU, Sibel AKSU YILDIRIM, Öznur TUNCA YILMAZ

Turkish Adaptation of ACTIVLIM Questionnaire in Neuromuscular Diseases by Rasch Analysiz

Purpose: The aim of this study was to assess the reliability and validity of the ACTIVLIM questionnaire for Turkish-speaking neuromuscular disease (NMD) patients with the Rasch analysis. Methods: 169 NMD patients were included to the study. The independence level regarding activities of daily living was assessed using the Functional Independence Measurement (FIM) scale while activity limitation was evaluated with the Activlim questionnaire. All assessments were performed twice, at the beginning of the study and 15 days later. Statistically analysis were done by using Rasch method. Results: 95 children with a median age of 10 and 74 adults with a median age of 34.5 years were included to the study. Seventy patients (41.7%) were assessed a second time. Starting with 22 items, one item (ACTIVLIM 5- Sitting on the toilet) displayed disordered thresholds, necessitating collapsing of categories. According to test/retest reliability, none of the items showed differential item functioning. Internal consistency of the scale is sufficent (Cronbach’s alpha 0.94). The scale showed expected correlation with FIM scores ( Pearson 0.95) which revealed external construct validityof the scale. Conclusion: ACTIVLIM is found as a reliable and valid questionnaire that can be used in the Turkish NMD population to assess activity limitation.

Anahtar Kelimeler:

Neuromuscular Disease, Reliability and Validity, Activities of Daily Living

ACTIVLIM Ölçeği’nin RASCH Analizi ile Nöromusküler Hastalıklarda Türkçe Adaptasyonu

Amaç: Bu çalışmanın amacı, Türkçe konuşan nöromüsküler hastalığı (NMH) olan bireylerde ACTIVLIM Ölçeği’nin Rasch analizi ile güvenirlik ve geçerliğini değerlendirmektir.Yöntem: Çalışmaya 169 NMH hastası dahil edildi. Günlük yaşam aktiviteleri ile ilgili bağımsızlık düzeyi Fonksiyonel Bağımsızlık Ölçeği, aktivite kısıtlaması ACTIVLIM Ölçeği kulanılarak değerlendirildi. Değerlendirmeler, çalışmanın başında ve 15 gün sonra olmak üzere iki kez yapıldı. İstatistiksel analiz Rasch yöntemi kullanılarak yapıldı.Sonuçlar: Çalışmaya, ortanca yaşı 10 olan 95 çocuk ve ortanca yaşı 34,5 olan 74 yetişkin dahil edildi. Yetmiş hasta (% 41,7) ikinci kez değerlendirildi. 22 maddeden ile başlanmış olup, bir maddeye (ACTIVLIM 5- Tuvalette oturma) ilişkin eşik değerleri, ölçek kategorileri ile uyumsuzluk gösterecek şekilde sıra takip etmedi. Test / tekrar test güvenirliğine göre, maddelerden hiçbiri madde işlev farklılığı göstermedi. Ölçeğin iç tutarlılığı yeterlidir (Cronbach’ın alfa 0,94). Ölçek, dış yapı geçerliliğini oluşturan FBÖ puanları ile beklenen korelasyonu göstermiştir (Pearson 0,95). Tartışma: ACTIVLIM, Türk NMH popülasyonunda aktivite kısıtlılıklarını değerlendirmek için kullanılabilecek güvenilir ve geçerli bir anket olarak bulunmuştur.

Keywords:

Nöromüsküler Hastalık, Güvenirlik ve Geçerlik, Günlük Yaşam Aktiviteleri,

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