Ayşegül İŞLER DALGIÇ, Emine EFE, Ayla KAYA, Süreyya SARVAN, Hayriye BAŞER

Talasemi Hastalarında Sağlıklı Yaşam Biçimi Davranışları

Sağlıklı yaşam biçimi davranışlarının geliştirilmesi bireyin genel sağlık ve iyilik durumunu iyileştirmeyi amaçlar. Talasemi hastalarında sağlıklı yaşam biçimi davranışlarını belirleyen çalışmaya rastlanmamıştır. Bu nedenle çalışma literatüre önemli katkı sağlamakta ve talasemi hastalarının yararına, hemşireler için önemli veriler sunmaktadır. Literatürde bu konudaki bilgi açığını gidermeye yönelik planlanan bu çalışmanın amacı, talasemi hastalarında sağlıklı yaşam biçimi davranışlarını belirlemektir.Bu tanımlayıcı çalışma, Türkiye’nin Antalya İli’nde iki farklı hastanede takip ve tedavi edilen (9 yaş ve üzeri) 151 talasemi hastası ile gerçekleştirildi. Araştırmanın verileri, Kişisel Bilgi Formu ve Sağlıklı Yaşam Biçimi Davranışları Ölçeği-II kullanılarak elde edildi.Ölçeğin genel cronbach alpha güvenirlik katsayısı 0.93. Katılımcıların ölçek toplam puan ortalaması 2.48±0.03'dir. Eğitim, çalışma durumu, kardeş sayısı, oturduğu yerleşim yeri ile puan ortalamaları arasında istatiksel olarak anlamlı bir fark vardı (p<0.05). Sonuç olarak; talasemi hastalığına sahip bireylerin sağlıklı yaşam biçimi davranışları puan ortalamaları orta düzeyde bulunmuştur. Bu doğrultuda talasemi hastaları ile çalışan hemşireler, hastalarına sağlıklı yaşam biçimi davranışı kazandırma konusunda bilgilendirmede önemli bir konuma sahiptirler. Araştırmadan elde edilen sonuçlar doğrultusunda hemşireler tarafından, talasemi hastalığına sahip bireylerin yaşam tarzı değişimine yönelik eğitim ve danışmanlık programlarının hazırlanması, eğitimin etkinliğinin değerlendirilmesi ve sağlıklı yaşam biçimi davranışlarını etkileyen faktörler konusundaki bilgilerin uygulamalara yansıtılması önerilmektedir.

Anahtar Kelimeler:

Talasemi major, sağlıklı yaşam biçimi davranışları

Healthy Lifestyle Behaviors in Patients with Thalassemia Major

Healthy Lifestyle Behaviors promotion purposes usual health and wellness position of the persons. No previous studies have been reported to determine healthy lifestyle behaviors in patients with thalassemia major. Therefore, this study is suggested to contribute to the recent literature by providing significant data about patients with thalassemia major for nurses. Because there is a limited number of studys in the literature, this study aims to investigate the healthy lifestyle behaviors in patients with thalassemia major.This descriptive study was conducted with 151 follow-up and treated patients with thalassemia major (9 years old and above) in two hospitals in Antalya. The study data was analyzed with a Personal Information Form and the Healthy Lifestyle Behaviors Scale-II. The Cronbach Alpha reliability coefficient was 0.93. The total scale score was 2.48±0.03. There was a statistically significant difference between the mean scores and educational level, employment status, number of siblings, place of residence of participants (p<0.05). The mean total score of patients with thalassemia major healthy lifestyle behaviours scale was found to be a moderate level. Therefore, health professionals especially nurses who work with patients with thalassemia major are considered to undertake a great responsibility to assist them to maintain healthy lifestyle behaviors. According to the results obtained from the research, it is suggested that training and consulting programs be prepared for the improvement of lifestyles in patients with thalassemia major and the effectiveness of this training be evaluated, information about the factors affecting and their healthy lifestyle behaviours be reflected to practical processes by nurses.

Keywords:

Thalassaemia Major Healthy Lifestyle Behaviors, Nurse,

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