Rengin ERDAL, Ebru Hatice AYVAZOGLU SOY, Aydan Akyuz OZDEMİR

Being a hemodialysis patient. Is it a disruption in life?

Aim: The restrictions of the renal replacement therapy affect the quality of life of patients diagnosed with End Stage Renal Disease(ESRD). The struggle of surviving with the chronic illness brings the need for social support. Herein, we described the perception ofthe hemodialysis (HD) patients to define the social support to increase the life quality.Material and Methods: We included 378 (190 females; 188 males) patients in the study. The patients were attending HD sessions forat least six months. Social relations after ESRD diagnosis were evaluated with a questionnaire. A pilot study of the questionnaire wasexecuted at HD centers of Başkent University. According to the results, the language of the questionnaire is simplified. Data wereanalyzed by SPSS software version 16.Results: The mean age was 54±16.5 years. Half them had primary school education (54%), where the majority was women. Theeffect of the HD treatment on the social life was statistically significant in both male and female patients. The percentage of rise inthe expectation from the partner (50%) and failing at the family liabilities (45.7%), were higher in male patients. In both gender, thehighest percentage was the rise in the expectation from the relatives ( females 63.7%; males 66%). The effect of the HD treatmenton social and work life found to be changed according to the level of education. As the level of education increased, the percentageof loneliness and social isolation increased. Among all components of social life the need of the partner support was the highest(43.4%).Conclusion: ESRD patients have a life full of disruptions starting from the first day of diagnosis. Being dependent to a health facilityand living with dietary restrictions make their life more unbearable and bring the need for support by all means

PDF

___

1. Gerogianni S, Babatsikou F, et al. Social aspects of renal failure in patients undergoing haemodialysis. Int J Caring Sci 2014;7:740-45.
2. Kimmel P, Patel SS. Quality of life in patients with chronic kidney disease. Focus on the end-stage renal disease treated with hemodialysis. Semin Nephrol 2006;26:68-79.
3. Patel SS, Peterson RA, Kimmel PL. The impact of social support on end-stage renal disease. Semin Dial 2005;18:98- 102.
4. Kimmel PL, Emont L, Newmann JM, et al. ESRD patient quality of life: Symptoms, spiritual beliefs, psychosocial factors, and ethnicity. Am J Kidney Dis 2003;42:713-21.
5. Patel S, Shah VS, Peterson RA, et al. Psychosocial variables, quality of life, and religious beliefs in ESRD patients treated with hemodialysis. Am J Kidney Dis 2002;40:1013-22.
6. Kimmel PL. Psychosocial factors in dialysis patients. Kidney Int 2001;59:1599-613.
7. Kimmel PL, Peterson RA, Weihs KL, et al. Multiple measurements of depression predict mortality in a longitudinal study of chronic hemodialysis patients. Kidney Int 2000;57:2093-98.
8. Kimmel PL, Peterson RA, Weihs KL, et al. Psychological functioning, quality of life, and behavioral compliance in patients beginning hemodialysis. J Am Soc Nephrol 1996;7:2152-59.
9. Μuehrer JR, Schatell D, Witten B, et al, M. Factors affecting employment at initiation of dialysis. Clin J Am Soc Nephrol 2011;6:489-96.
10. Dingwall R. Living with renal failure: the psychological issues. Edtna Erca J 1997;4:30-5.
11. Pruchno AR, Wilson-Genderson M, Cartwright PF. Depressive symptoms and marital satisfaction in the context of chronic disease: A longitudinal dyadic analysis. J Am Psychol 2009;23:573-84.
12. Sprangers MA, De Regt EB, Andries F. Which chronic conditions are associated with better or poorer quality of life? J Clinl Epidemiol 2000;53:895-907.
13. Zyga S. Chronic kidney disease and quality of life. 9th Panhellenic Conference of Public Health, Athens, Greece 26-28.03.2012
14. Lin CC, Lee BO, Hicks FD. The phenomenology of deciding about hemodialysis among taiwanese. West J Nurs Res 2005;27:915-29.
15. Blake C, Codd MB, Cassidy A, et al. Physical function, employment and quality of life in end-stage renal disease. J Nephrol 2000;13:142-9.
16. Theofilou P. Quality of life and chronic end stage renal failure: a qualitative analysis. Interdisciplinary Health Care 2011;3:70-80.
17. Ryan RM, Brown KW. Why we don’t need selfesteem: On fundamental needs, contingent love, and mindfulness. PsycholInq 2003;14:71-6.
18. Paradise AW, Kernis MH. Self-esteem and psychological well-being: implications of fragile self-esteem. J Soc Clin Psych 2002;21:345-49.
19. Tossani E, Cassano P, Fava M. Depression and renal disease. Semin Dial 2005;18:73-81.
20. Drayer RA, Piraino B, Reynolds CF, et al. Characteristics of depression in hemodialysis patients: symptoms, quality of life and mortality risk / Gen Hosp Psychiatry 2006;28:306- 12.
21. Kimmel PL, Peterson RA, Weihs KL, et al. Aspects of Quality of Life in Hemodialysis Patients. J Am Soc Nephrol 1995;6:1418-26.
22. Cukor D, Scott D, Cohen Rolf A, et al. Psychosocial Aspects of Chronic Disease: ESRD as a Paradigmatic Illness. J Am Soc Nephrol 2007;18:3042-45.
23. Gerogianni KG. Stressors of patients undergoing chronic hemodialysis. Nursing 2003;42:228-46.
24. Horsburgh ME, Rice VH, Matuk L. Sense of coherence and life satisfaction: Patient and spousal adaptation to home dialysis. ANNA J 1998;25:219-28.
25. Triantaphillopoulou E, Iphou A, Arvaniti P, et al. Psychological nursing support for elderly patients undergoing chronic regular haemodialysis. Edtna Erca J 1998;1:29-31.
26. Dingwall RR. Living with renal failure: the psychological issues. European Dialysis and Transplant Nurses Association/ Eur Renal Care Association J 1997;4:28-30.
27. Gerogianni S, Babatsikou F, Gerogianni G, et al.Concerns of patients on dialysis: a research study .Health Sci J 2014;8:423-37.
28. Kaitelidou D, Liaropoulos L, Siskou O, et al. The social and economic consequences of dialysis in patients’ lives with chronic renal insufficiency. Nursing 2007:46:246-55.
29. Özdemir AA, Sayın CB, Erdal R, et al. Quality of life through gender role perspective in candidate renal transplant recipients: a report from başkent university using the short form 36 health survey. Exp Clin Transplant 2018;1:28-34.
30. Özdemir AA, Sayın CB, Erdal R, et al. Influence of social, economic, familial, marital status, and disease adaptation on the physical and mental health dimensions of patients who are candidates for renal transplan. Exp Clin Transplant 2018;1:112-16.
31. Ozdemir AA. Hemodializ tedavisi gören kronik böbrek yetmezliği hastalarının tedavilerinin toplumsal cinsiyet yaklaşımı ile değerlendirilmesi. Doktora Tezi, Ankara, 2016
32. Acaray A, Pınar R. Kronik hemodiyaliz hastalarının yaşam kalitesinin değerlendirilmesi. C.U. Hemşirelik Yüksek Ookulu Dergisi 2004;8:1-11.
33. Seica A, Segall L, Verzan C, et al. Factors affecting the quality of life of haemodialysis patients from Romania: a multicentric study. Nephrol Dial Transplant 2009;24:626-9.
34. Alshraifeen A, McCreaddie M, Evans JM. Quality of life and well-being of people receiving haemodialysis treatment in Scotland: A cross-sectional survey. Int J Nurs Pract 2014;20:518-23.
35. Sathvik BS, Parthasarathi G, Narahani MG et al.An assessment of the quality of life in hemodialysis patients using the WHOQOL-BREF questionnaire. Indian J Nephrol 2008;18:141-9.
36. Moreno F, Lopez Gomez JM, Sanz-Guajardo D, et al. Quality of life in dialysis patients. A spanish multicentre study. Nephrol Dial Transplant 1996;2:125-9.
37. Merkus MP, Jager KJ, Dekker FW, et al. Predictors of poor outcome in chronic dialysis patinets: the netherlands cooperative study on the adequacy of dialysis. The NECOSAD study group. Am J Kidney Dis 2000;35:69-79.
38. Bodenheimer T, Lorig K, Holman H, et al. Patient selfmanagement of chronic disease in primary care. JAMA 2002;288:2469-75.
39. Winkleby M, Jatulis DE, Frank E, et al. Socioeconomic status and health: how education, income, and occupation contribute to risk factors for cardiovascular disease. Am J Public Health 1992;82:816-20.