Önder ÖZTÜRK, Serpil ERERMİŞ, Eyüp Sabri ERCAN, FİGEN GÜLEN, Burge KABUKÇU BAŞAY, Ömer BAŞAY, SEZEN KÖSE, Fatma ÖZGÜN ÖZTÜRK, Hüseyin ALAÇAM, Cahide AYDIN

Otizm spektrum bozukluğunda yaşam kalitesi diğer kronik hastalıklardan veya sağlıklılardan farklı mıdır?

Amaç: Otistik spektrum bozukluğu (OSB) sosyal becerilerde ve iletişimde bozukluk, kısıtlı ilgiler ve yineleyici hareketlerle karakterize bir tablodur. Çalışmamızda 102 OSB olan çocuğun yaşam kalitesini (YK) dikkat eksikliği hiperaktivite bozukluğu (DEHB) olan, astımı olan çocuklarla ve sağlıklı çocuklarla karşılaştırmak ve ilişkili klinik etkenleri değerlendirmek amaçlanmıştır. Yöntem: Çalışmamızda YK değerlendirmesinde Çocuklar için Yaşam Kalitesi Ölçeği (ÇİYKÖ) kullanılmıştır. Anne-babalar çalışmamız için hazırlanan sosyodemografik bilgi formunu, Çocukların Davranışlarını Değerlendirme Ölçeği'ni ve Turgay DSM-IV'e Dayalı Yıkıcı Davranış Bozukluklarını Tarama ve DeğerlendirmeÖlçeğini doldurmuşlardır. Bulgular: Analiz sonuçlarına göre, fiziksel sağlık, psikososyal sağlık, sosyal işlevsellik ve ölçek toplam puanı OSB grubunda hem sağlıklı çocuklardan, hem de DEHB ve astımlı çocuk hastalardan daha düşük bulunmuştur. Okul işlevselliği OSB grubunda astım hastalarından ve sağlıklılardan düşük bulunurken, emosyonel işlevsellik puanı açısından gruplar arası anlamlı fark bulunamamıştır. Bunun yanında OSB grubunda toplam problem puanı, dikkat eksikliği ve hiperaktivite puanı astımlılardan ve sağlıklılardan; içe yönelim puanı ise sağlıklılardan anlamlı olarak yüksek bulunmuştur. Sonuç: OSB hastalarında belirlenen YK'deki olumsuz etkilenmenin, olasılıkla hastalardaki işlev kayıplarına ve hastalıkla ilişkili sorun davranışlara bağlı olabileceği düşünülmüştür. Ayrıca bu sorunun sadece çocukları değil, tüm aileyi etkilemesi olası bir sonuçtur. (Anadolu Psikiyatri

Does the quality of life in autism spectrum disorder differ from other chronic disorders and healthy children?

Objective: Autism spectrum disorder (ASD) is characterized by deficits in social interaction, communication, restricted interests, and repetitive patterns of behavior. This study examined quality of life (QoL) and related clinical factors in children with ASD, compared to children with Attention Deficit Hyperactivity Disorder (ADHD), children with asthma, and healthy controls (HC). Methods: QoL was assessed by the Pediatric Quality of Life Inventory 4.0 (PedsQLTM 4.0). Additionally, parents of the children provided sociodemographic information and filled out an evaluation questionnaire, child behavior check list (CBCL), and Turgay DSM-IV Disruptive Behavior Disorders Rating Scale (T-DSM-IV-S). Results: The physical health, psychosocial health, social functioning, and scale total score of the ASD group were significantly lower than those of the three comparison groups. The school functioning score domain was lower in the ASD group than in the asthma and HC groups. In contrast, the emotional functioning domain assessments did not reveal statistically significant differences between the ASD group and the comparison groups. In the ASD group, the total problem score, inattention, and hyperactivity scores were significantly higher than both the asthma and HC groups, and the internalizing scores were higher than the healthy group. Conclusion: The poor QoL is most likely due to functional losses and problem behaviors related to ASD and may negatively affect not only children with ASD but also the whole life of the family. (Anatolian Journal of Psychiatry 2016; 17(5):419-426)

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