Kronik hastalığı olan çocukların sağlıklı kardeşlerinde yaşam kalitesi değerlendirilmesi

Kronik hastalığı olan çocuklarda yaşam kalitesinin belirlenmesi, hastalığın tedavi başarısı ile yakından ilişkilidir. Yaşam kalitesi değerlendirme çalışmaları kronik hastalığı olan birey ile sınırlı kalmamış,hastanın aile bireylerinin de değerlendirilmesi gereklililiğini ortayaçıkarmıştır. Çocuğun kronik hastalık tanısı almasıyla beraber, aileyapısında değişiklikler ortaya çıkmakta, aile içi rollerde değişikliklerolmaktadır. Kronik hastalığı olan çocukların sağlıklı kardeşlerinde yaşam kalitesinde genellikle tümden bir etkilenmenin olduğunu göstermektedir. Sağlıklı kardeşler içe kapanma, saldırganlık, depresyon,kaygı, suçluluk ve izolasyon gibi farklı duygular yaşamaktadırlar. Psikososyal etkilenmenin (kısa süreli ya da tüm yaşamı etkileyen); kronikhastalığın tipi, şiddeti, tanı almasının üzerinden geçen süre, sağlıklıkardeşin yaşı ve cinsiyeti ve sağlıklı kardeşin başa çıkma yetisi ile ilişkili olduğu gösterilmiştir. Bu nedenle kronik hastalığı olan çocuklarınsağlıklı kardeşlerinin yaşam kalitesi ile ilgili daha kapsamlı çalışmalaryapılması önerilmektedir. Bu çocuklara yönelik duygu ve düşüncelerini özgürce ifade edebileceği destek grupları oluşturmanın (özellikleaile destek grupları), çocuğun iyilik halini ve özbenliğini olumlu olarak etkileyebileceği düşünülmektedir

Evaluation of quality of life of healthy siblings of children with chronic disease

The quality of life determination of children with chronic disease is closely related to treatment success. Quality of life assessment studies revealed that it was not limited to the individual, the quality of life of the family members also had to be assessed. Along with the child being diagnosed with chronic illness, some changes occur in the family structure, and in family roles. Quality of life assessment studies in healthy siblings generally indicate a global influence. These children live in different senses such as closure, aggression, depression, anxiety, guilt, and isolation. Psychosocial impact (short or long-term) of healthy siblings have been associated with disease type, severity, disease duration, age, sex, and ability to cope. Further comprehensive studies among healthy siblings of children with chronic disease about quality of life are needed. Building support groups (especially family support groups) to express feelings and thoughts freely for healthy siblings can positively affect the well-being and self-esteem of the child.

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