Otizm spektrum bozukluğu tanılı çocuk sahibi Annelerin deneyimleri

Otizm spektrum bozukluğu (OSB) tanılı bireylerin aileleri, özellikle de anneleri bir takım olumsuz duygular vedeneyimler yaşayabilmektedirler. OSBli bireylerin ailelerinin deneyimlerinin incelendiği araştırmalar, ailelereyönelik hizmetlerin planlanmasında ve etkili bir şekilde uygulanmasında yol gösterici bir rol oynamaktadır. Buaraştırmada, OSBli çocuk sahibi annelerin deneyimleri ve OSB hakkındaki algıları fenomenolojik(olgubilimsel) desenle incelenmiştir. Veriler, mecazlarla (metafor) toplanıp, betimsel olarak analiz edilmiştir.Annelerin OSBye ilişkin mecazlarını ve bu mecazların anlamlarını içeren bulgular, ilgili alanyazın bağlamındatartışılarak, uygulama ve ileri araştırmalar doğrultusunda öneriler sunulmuştur.

Living with a child with autism spectrum disorders: experiences of mothers

The research about the experiences of mothers provides unique findings concerning their support. The goal ofthis study is to understand the experiences of 20 Turkish mothers of children with autism spectrum disorders(ASD). This study has been conducted by utilizing a phenomenological approach, which is a type of qualitativemethodology that aims to explore an individual s personal experiences. Data were collected using metaphors,which are a valuable data collection tool for gathering deep and new insights into educational studies. This datawill then be analyzed via descriptive analysis. The results discussed in terms of implications for future researchand practices. We are expecting this study to provide new knowledge about the perspectives of mothers indifferent countries like Turkey.

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  • Yazar Notları
  • Yazarlar, katılımcı annelere OSB yolculuklarını içtenlikle paylaştıkları için teşekkürlerini sunarlar. Ayrıca, çalışmada emekleri geçen Çağrı Çördük’e, Ebru Çelik’e, İbrahim Çetin’e, Kezban Dündar’a, Kübra Günay’a, Mehmet Akgül’e ve Yasemin Şener’e teşekkür ederler. Bu çalışma, “Living with a child with Autism Spectrum Disorders (ASD): Experiences of Turkish mothers” başlıklı bildiri olarak, 2014, Eighth Annual Autism Conference’da, (Louisville, KY) poster bildiri olarak sunulmuştur.