Yağmur BERKTAŞ, Ülkü Miray YILDIRIM, Rejin KEBUDİ

YETİŞKİN VE PEDİATRİK KANSERLİ HASTALARDA İLERİ BAKIM PLANLAMASI: GÖZDEN GEÇİRME

İleri bakım planlaması (İBP) herhangi bir yaştaki veya sağlıklarının farklı aşamalarındaki yetişkinlerin kişisel değerlerini, yaşam hedeflerini ve gelecekteki tıbbi bakımla ilgili tercihlerini anlama ve paylaşma konusunda destekleyen bir süreçtir. Bu süreç herhangi bir zamanda başlayabilir ve periyodik olarak tekrar gözden geçirilebilir fakat bir kişinin tıbbi durumu her değiştiğinde İBP’ ye yeniden odaklanılmalıdır. Daha önceki araştırmalar, birçok insanın yaşamlarının sonunda bakımla ilgili endişe ve isteklerinin olduğunu ve karar alma süreçlerine aktif olarak katılmak istediklerini ortaya koymuştur. İleri evre kanser tanısı olan bireylerin İBP tartışmalarına katılma istek ve arzularının diğer hasta gruplarına göre farklılık gösterdiğine dair kanıtlar mevcuttur. İBP kullanımı ve uygulanmasında hâla görüş farklılıkları bulunmaktadır. Bu görüş farklılıklarının nedenleri arasında İBP’ nin önündeki engellerin, İBP’yi çevreleyen korkunun, kültürler arası farklılıkların ve önceki sağlık deneyimlerinin etkisi olabilmektedir. Dünya’ da Tıbbi Onkoloji alanında, palyatif bakım ilkeleri ve ileri bakım planlaması için giderek artan bir literatür mevcuttur. Bu derlemenin amacı; Erişkin ve çocuk kanser hastalarında İBP’ nin göze çarpan özelliklerini aydınlatmak ve bu kavramı Türk literatürüne kazandırmaktır.

Anahtar Kelimeler:

İleri bakım planlaması, yetişkin kanser, pediatrik kanser

ADVANCE CARE PLANNING IN ADULT AND PEDIATRIC CANCER PATIENTS: A REVIEW

Advance care planning (ACP) aims to support patients regardless of age or stage of health to understand and share personal values, goals in life, and future medical care preferences. This process which may be started at any time should be reviewed at periodical intervals depending on individuals’ medical conditions. According to previous research, end-of-life care is a source of deep concern for many people who want to ensure active involvement in decision-making processes. Compared to other patient groups, individuals suffering from advanced cancer may have different levels of willingness regarding being a part of ACP discussions, as evidence shows. The barriers to ACP, the fear surrounding ACP, cultural differences, and previous health experiences have generated differences of opinion on the use and implementation of ACP. Across the world, palliative care principles and advance care planning are developing in the field of Medical Oncology. This review aimed to present the most important features of ACP in adult and pediatric cancer patients and to incorporate this concept to Turkish literature.

Keywords:

Advance care planning, adult cancer, pediatric cancer,

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