Reliability and construct validity of the Turkish adaptation of the Assessment of Life Habits for children and adolescents with cerebral palsy
Objectives: The Assessment of Life Habits (LIFE-H) is a well-known questionnaire used to evaluate participation. The aim of this study was to determine the reliability and validity of the Turkish version of the LIFE-H in children with Cerebral Palsy (CP). Patients and Methods: The study included 450 children with CP between the ages of 2-18 years old. The internal consistency and testretest reliability of the LIFE-H were calculated. The construct validity of the LIFE-H was determined with the Pediatric Evaluation of Disability Inventory (PEDI) domains and Pediatric Outcome Data Collection Instrument (PODCI) subscales. Results: The mean age of the children was 8.37±5.13 years (42.4% female, 57.6% male). The internal consistency of the LIFE-H was determined to be acceptable for all categories (Cronbach alpha:0.794-0.999). The test-retest reliability values were found to be of good to excellent reliability (ICC:0.804-0.999). The correlation between the LIFE-H total scores, PODCI subscales and PEDI domains was determined as acceptable (rho between 0.538-0.894) except for the Pain/Comfort, Happiness subscales of the PODCI (rho:0.240 – 0.479). Conclusions: It was determined that the Turkish LIFE-H had acceptable internal consistency, good test-retest reliability and satisfactory construct validity. Turkish LIFE-H is an appropriate tool to assess the participation of children and adolescents with CP.
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- World Health Organization. International Classification
of Functioning, Disability, and Health: Children & Youth
Version: ICF-CY. Geneva: World Health Organization Press;
2007.
- Björck-Åkesson E, Wilder J, Granlund M, et al. The
International Classification of Functioning, Disability and
Health and the version for children and youth as a tool in
child habilitation/early childhood intervention–feasibility
and usefulness as a common language and frame of reference
for practice. Disabil Rehabil 2010;32(sup1):125-38. doi:
10.3109/09638.288.2010.516787
- Sandberg A, Eriksson A. Children’s participation in preschool–
on the conditions of the adults? Preschool staff ’s concepts of
children’s participation in preschool everyday life. Early Child
Dev Care 2010;180:619-31. doi:10.1080/030.044.30802181759
- Law M, King G, Petrenchik T, Kertoy M, Anaby D. The
assessment of preschool children’s participation: internal
consistency and construct validity. Phys Occup Ther Pediatr
2012;32:272-87. doi:10.3109/01942.638.2012.662584
- Günel MK, Türker D, Ozal C, Kara OK. Physical management
of children with cerebral palsy. In: Svraka E. ed. Cerebral
Palsy-Challenges for the Future. Croatia: IntechOpen, 2014:
29-74. doi: 10.5772/57505
- Chiarello LA, Palisano RJ, Orlin MN, Chang H-J, Begnoche
D, An M. Understanding participation of preschool-age
children with cerebral palsy. J Early Interv. 2012;34:3-19. doi:
10.1177/105.381.5112443988
- Resch C, Van Kruijsbergen M, Ketelaar M, et al. Assessing
participation of children with acquired brain injury and
cerebral palsy: a systematic review of measurement properties.
Dev Med Child Neurol 2020;62:434-44. doi: 10.1111/
dmcn.14465
- SSchwellnus H, King G, Baldwin P, Keenan S, Hartman LR.
A solution-focused coaching intervention with children and
youth with cerebral palsy to achieve participation-oriented
goals. Phys Occup Ther Pediatr 2020;40:423-440. doi:
10.1080/01942.638.2020.1711841
- Türkiye İstatistik Kurumu [Turkish Statistical Institute].
Doğum İstatistikleri [Birth Statistics]. [cited 2020 26.06].
Available from: file:///C:/Users/AY%C5%9EE/Desktop/
Haber_Bulteni.pdf
- Serdaroǧlu A, Cansu A, Özkan S, Tezcan S. Prevalence
of cerebral palsy in Turkish children between the ages of
2 and 16 years. Dev Med Child Neurol 2006;48:413-6.
doi:10.1111/j.1469-8749.2006.tb01288.x
- Law M, Finkelman S, Hurley P, et al. Participation of children
with physical disabilities: relationships with diagnosis,
physical function, and demographic variables. Scand J Occup
Ther. 2004;11:156-62. doi: 10.1080/110.381.20410020755
- Bjornson KF, Zhou C, Stevenson RD, Christakis D. Relation of
stride activity and participation in mobility-based life habits
among children with cerebral palsy. Arch Phys Med Rehabil
2014:360-8. doi:10.1016/j.apmr.2013.10.022
- Palisano R, Rosenbaum P, Bartlett D, Livingston M. Gross
motor function classification system expanded and revised
(gmfcs-e & r). Ontario:McMaster University Press, 2007.
- El Ö, Baydar M, Berk H, Peker Ö, Koşay C, Demiral
Y.Interobserver reliability of the Turkish version of the
expanded and revised gross motor function classification
system. Disabil Rehabil 2012;34:1030-3 doi:10.3109/09638.28
8.2011.632466
- Eliasson AC, Krumlinde Sundholm L, Rösblad B, et al. The
Manual Ability Classification System (MACS) for children
with cerebral palsy: scale development and evidence of
validity and reliability. Dev Med Child Neurol. 2006;48:549-
54. doi: 10.1111/j.1469-8749.2006.tb01313.x
- Akpinar P, Tezel CG, Eliasson AC, Icagasioglu A. Reliability
and cross-cultural validation of the Turkish version of
Manual Ability Classification System (MACS) for children
with cerebral palsy. Disabil Rehabil 2010;32:1910-6.17.
doi:10.3109/096.382.81003763796
- Hidecker MJC, Paneth N, Rosenbaum PL, et al.
Developing and validating the Communication Function
Classification System for individuals with cerebral palsy.
Dev Med Child Neurol 2011;53:704-10. doi: 10.1111/j.1469-
8749.2011.03996.x
- Sellers D, Mandy A, Pennington L, Hankins M, Morris C.
Development and reliability of a system to classify the eating
and drinking ability of people with cerebral palsy. Dev Med
Child Neurol 2014;56:245-51. doi: 10.1111/dmcn.12352 2
- Noreau L, Desrosiers J, Robichaud L, Fougeyrollas P, Rochette
A, Viscogliosi C. Measuring social participation: reliability of
the LIFE-H in older adults with disabilities. Disabil Rehabil
2004;26:346-52. doi:10.1080/096.382.8041000.165.8649
- Noreau L, Fougeyrollas P, Vincent C. The LIFE-H: Assessment
of the quality of social participation. Technol Disabil
2002;14:113-8. doi: 10.3233/TAD-2002-14306
- Desrosiers J, Noreau L, Robichaud L, Fougeyrollas P,
Rochette A, Viscogliosi C.Validity of the assessment of life
habits in older adults. J Rehabil Med 2004;36:177-82. doi
10.1080/165.019.70410027485
- Goh H-T, Ramachandram K, Ahmad-Fauzi A, Subamanian
P.Test-Retest Reliability and Validity of the Malay Version
Life Habits Assessment (LIFE-H 3.1) to measure social
participation in adults with physical disabilities. J Geriatr Phys
Ther 2016;39:132-9. doi: 10.1519/JPT.000.000.0000000064
- Noreau L, Lepage C, Boissiere L, et al. Measuring participation
in children with disabilities using the Assessment of Life
Habits. Dev Med Child Neurol. 2007;49(9):666-671. DOI: doi.
org/10.1111/j.1469-8749.2007.00666.x
- Eremenco SL, Cella D, Arnold BJ. A comprehensive method
for the translation and cross-cultural validation of health
status questionnaires. Eval Health Prof. 2005;28(2):212–32.
DOI: 10.1177/016.327.8705275342
- Daltroy LH, Liang MH, Fossel AH, Goldberg MJ. The
POSNA pediatric musculoskeletal functional health
questionnaire: report on reliability, validity, and sensitivity
to change. J Pediatr Orthop. 1998;18(5):561-571. DOI:
10.1097/00004.694.199809000-00001
- Keskin Dilbay N, Kerem Günel M, Aktan T. Pediatrik Veri
Toplama Aracının (PVTA) Türkçe versiyonunun serebral
palsili bireylerde geçerlik ve güvenirliği. [Reliability and
validity of Turkish version of Pediatric Outcome Data
Collection Instrument (PODCI) for people with cerebral
palsy]. Fizyoterapi Rehabilitasyon. 2013;24(1):118-126.
- Haley SM. Pediatric Evaluation of Disability Inventory
(PEDI): Development, standardization and administration
manual. Boston: PEDI Resarch Group; 1992.
- Erkin G, Elhan AlH, Aybay C, Sirzai H, Ozel S.
Validity and reliability of the Turkish translation
of the Pediatric Evaluation of Disability Inventory
(PEDI). Disabil. Rehabil.2007;29(16):1271-1279.
DOI:10.1080/096.382.80600964307
- Cronbach LJ. Coefficient alpha and the internal structure
of tests. Psychometrika. 1951;16(3):297-334. DOI: 10.1007/
BF02310555
- Nunnally JC. Psychometric theory 3E. Michigan: Tata
McGraw-Hill Education, 1994.
- Koo TK, Li MYJ. A guideline of selecting and reporting
intraclass correlation coefficients for reliability research. J
Chiropr Med 2016;15:155-63. doi: 10.1016/j.jcm.2016.02.012
- Cohen J. Statistical Power Analysis for the Behavioral Sciences.
2nd edn. Hillsdale, Lawrence Erlbaum Associates, 1988. doi:
10.4324/978.020.3771587
- Mortazavi SN, Rezaei M, Rassafiani M, Tabatabaei M,
Mirzakhani N. Validity and Reliability of Persian Version of
LIFE Habits Assessment for children with cerebral palsy aged
between 5 and 13 Years Old. Arch Rehabil 2014;14:115-23.
- Alghamdi MS, Chiarello LA, Palisano RJ, McCoy SW.
Understanding participation of children with cerebral palsy in
family and recreational activities. Res Dev Disabil 2017;69:96-
104. doi: doi.org/10.1016/j.ridd.2017.07.006.
- Mei, Cristina, et al. Activities and participation of children
with cerebral palsy: parent perspectives. Disabil Rehabil 2015;
37: 2164-73. doi:10.3109/09638.288.2014.999164.