WHAT DO PEOPLE WITH DISABILITIES AND OLDER PEOPLE THINK ABOUT THE TRAINING OF THE PERSONAL CARE GIVERS? A TRANSNATIONAL STUDY

The aim of this study is to investigate the profile of the Personal Care Givers (PCGs), for the preparation of the basic training curriculum, who are serving for the older people and the people with disabilities (PwD) among the selected European countries. A total of 276 questionnaires were completed by respondents living in Flanders (Belgium), Bulgaria, Germany and Turkey, online or during an interview/focus group. All the questionnaires were completed by the participants online in those EU countries who took part in this study. Concerning the demographics of the beneficiaries, there were respondents exceeded 75 years of age (34.8%) and there was equal representation of the two genders. The 67.0% of the respondents encountered motor disabilities, while 27.9% stated that they encountered problems with vision, 24.9% with hearing, 15% encounter intellectual disabilities and 19.3% suffer from chronic diseases. While most of the respondents (84%) need assistance at home, they also highlighted the need of assistance in the workplace, in education, as well as in vocational rehabilitation. 35% of the respondents stated that they need assistance in at community. The results are extremely encouraging for the development of the personal care giver (PCG) training curriculum and material, since people from target groups identified that the preferred methods for training cover all areas that the selected EU countries plan to address. Together with the training modules that are already in practice by vocational and educational training (VET) centers, which were identified during the desktop research, the research’s results will work as a guide for the production of the study's outcomes.Bu çalışmanın amacı, seçilmiş Avrupa ülkelerinde kişisel bakım verenlerin (KBV) genel profilinin araştırılması ve hazırlanacak eğitim müfredatına temel oluşturmasıdır. Belçika, Bulgaristan, Almanya ve Türkiye’de yaşayan toplam 276 anket çevrimiçi veya yüz yüze olarak tamamlandı. Avrupa Birliği ülkelerindeki tüm anketler çevrimiçi olarak uygulandı. Yararlanıcıların demografik verilerine bakıldığında, 75 yaşını geçenlerin (%34,8) de yer aldığı ve her iki cinsiyetin eşit şekilde yer aldıkları görüldü. Cevap verenlerin %67,0’si fiziksel engelliyken, %27,9’u görme, 24,9’u işitme %15’i bilişsel ve %19,3’ü kronik hastalığa sahipti. Katılımcıların %84’ü evde bakıma ihtiyaç duyarken, birçoğunun iş ortamında, eğitim aldıkları yerlerde ve meşguliyet merkezlerinde yardıma ihtiyaçları olduğu tespit edildi. %35 katılımcı toplum içerisinde desteğe ihtiyacı olduğunu bildirdi. Ortaya çıkan sonuçlar, bakım verenlerin ihtiyaçlarını ortaya koyarak, seçilen Avrupa Birliği ülkelerinde geliştirilmesi gereken eğitim müfredatının içeriğinin belirlenmesinde çok önemli veriler ortaya koymuştur. Mesleki eğitim merkezlerinde hâlihazırda vergilemekte olan eğitimlerin değerlendirilmesine fırsat vererek önemli veriler ortaya koymuştur.

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  • 1. Eurostat. Disability statistics-prevalence and demographics. http://ec.europa.eu/eurostat/statistics-explained/index.php/Disability_statistics-health (Accessed July 15, 2015) 2. Eurostat. Population ageing in Europe. https://ec.europa.eu/research/social-sciences/pdf/policy_reviews/kina26426enc.pdf (Accessed July 15, 2015) 3. European Commission. Study of Compilation of Disability Statistical Data from The Administrative Registers Of The Member States. http://ec.europa.eu/social/BlobServlet?docId=3007&langId=en (Accessed 15 July 2015) 4. European Commission Communication From The Commission To The European Parliament, The Council, The European Economic And Social Committee And The Committee Of The Regions. European Disability Strategy 2010-2020: A Renewed Commitment to a Barrier-Free Europe, Brussels. http://ec.europa.eu/europe2020/pdf/europe2020stocktaking_en.pdf (Accessed: August 15, 2015) 5. Stone R, Cafferata GL, Sangl J. Caregivers of the frail elderly: A national profile. Gerontology, 1987, 27: 616-626. 6. Bookman A, Harrington M. Family Caregivers: A Shadow Workforce in the Geriatric Health Care System? Journal of Health Politics, Policy and Law. 2007;23:1105–41. 7. Given B, Sherwood PR, Given CW: State of the Science: Professional Partners Supporting Family Caregivers. American Journal of Nursing. 2008;108 Supplement: 28–34. 8. Cox EO, Dooley AC. Care-receivers’ perception of their role in the care process. Journal of Gerontological Social Work. 1996;26:133–152. 9. Blomquist KB, Brown G, Peersen A, et al. Transitioning to independence: challenges for young people with disabilities and their caregivers. Orthop Nurs. 1998;17:27-35. 10. Mangabeira WC, Lee RM, Fielding NG: Computers and qualitative research: Adoption, use, and representation. Social Science Computer Review. 2004;22:167-78. 11. Taylor SJ, Bogdan R: In: Introduction to qualitative research methods: A guidebook and resource. (3rd ed.). New York: Wiley, 1998. 12. Giovannetti ER, Wolff JL. Cross-survey differences in national estimates of numbers of caregivers of disabled older adults. Milbank Q. 2010;88: 310–349. 13. http://absoluutvzw.be/index.php/home/home-informeren/home-wat-is-pab%23welke-overeenkomsten-kan-je-afsluiten (Accessed July 10, 2015) 14. http://www.mlsp.government.bg/index.php?section=HOMEN2&lang=eng (Accessed June 10, 2015) 15. http://orgm.meb.gov.tr/meb_iys_dosyalar/2012_10/10110701_5378_sayili_kanun.pdf (Accessed July 10, 2015) 16. http://www.resmigazete.gov.tr/eskiler/2007/10/20071023-10.htm (Accessed July 18, 2015) 17. Horowitz A, Dobrof R. The role of families in providing long term care to the frail and chronically ill elderly living in the community: Final Report submitted to Health Care Financing Administration, Department of Health and Human Services (grant no. 18-P-9754/2-02), Washington, D.C, 1982. 18. Giovannetti ER. Measurement of informal caregiving to older disabled adults in the United States, Dissertation Thesis. The Johns Hopkins University, 2009. 19. Wolff JL, Dy SM, Frick KD, Kasper JD. End-of-Life Care: Findings From a National Survey of Informal Caregivers. Arch Intern Med. 2007;167(1):40-46.