Çocukluk Çağı Başlangıçlı Multipl Skleroz Hastalarında Öz Yeterlilik ve Sağlıkla İlişkili Yaşam Kalitesinin Değerlendirilmesi

Amaç: Bu çalışma ile çocukluk çağı başlangıçlı multipl skleroz (çMS) hastalarının öz yeterlilik ve sağlıkla ilişkili yaşam kalitesi düzeylerinin değerlendirilmesi amaçlanmıştır. Gereç ve Yöntemler: Ocak 2022 – Nisan 2022 tarihleri arasında kesitsel olarak gerçekleştirilen bu çalışmada çMS tanılı hastalalar Pediatrik Kronik Hastalık İçin Öz Yeterlilik Ölçeği (PKHÖYÖ) ve Çocuk Çağı Yaşam Kalitesi Ölçekleri (ÇÇYKÖ) ile değerlendirilmiştir. Bulgular: Ortalama yaşları 16.4 yıl olan 29 çMS hastası (K/E:20/9) çalışmaya katılmıştır. PKHÖYÖ ortalaması 101.8±22.4 puan elde edilmiş olup, ÇÇYKÖ skorlamasında ortalama 66.5±16.2 puan elde edilmiştir. Her iki değerin literatürde daha önceki yapılmış olan çalışmalardan düşük olduğu görülmüştür.Sonuç: Pediatrik Kronik Hastalık İçin Öz Yeterlilik Ölçeği ve ÇÇYKÖ ortalama skorlarının düşük olması çMS hastalarında yaygın görülen kronik yorgunlukla ilişkili olabilir. Ayrıca COVID-19 pandemisinin çMS hastalarında mental sağlık ve yaşam kalitesi üzerindeki etkisi de bu sonuçlar yorunmlanırken göz önünde bulundurulmalıdır.

Anahtar Kelimeler:

öz yeterlilik, yaşam kalitesi, çocukluk çağı, , multipl sklerosis

Evaluation of Self-Efficacy and Health-Related Quality of Life in Pediatric-Onset Multiple Sclerosis Patients

Objective: To assess the self-efficacy level and health-related quality of life in pediatric-onset multiple sclerosis (POMS) patients. Material and Methods: A cross-sectional study was conducted between January-April 2022 at Hacettepe University Department of Pediatric Neurology using The Pediatric Rating of Chronic Illness Self-Efficacy (PRCISE) Scale and Pediatric Quality of Life Inventory (PedsQL). Results: Twenty-nine POMS patients with a median age of 16.4 years (F/M: 20/9) were included in the study. The mean PRCISE Scale score was 101.8±22.4 and the mean PedsQL score was 66.5±16.2. Both scores were lower than previously reported in the literature. Conclusion: Lower self-efficacy and HRQoL levels might be attributed to fatigue which is common in POMS. The impact of the COVID-19 pandemic on mental health and quality of life should be addressed in patients with POMS.

Keywords:

self efficacy, health-related quality of life, pediatric-onset multiple sclerosis,

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