Development and psychometric testing of the Family Functioning Questionnaire in Rehabilitation (FFQR)

Background/aim: The present study aimed to develop a reliable and valid assessment tool for measuring family functioning inrehabilitation.Materials and methods: Semistructured interviews were performed with 100 rehabilitation professionals working in pediatrics toidentify the feature to be measured. The items determined with the qualitative analysis of the data were presented to 14 experts andcontent validity was provided. The questionnaire created based on the judgments of the experts was administered to 440 parents ofchildren with special needs.Results: After validity and reliability analysis, the final version of the questionnaire comprised 48 items with four factors identifiedas awareness, attitude and behavior, social participation, and engagement in rehabilitation. These factors explained 49.94% of thetotal variance and the factor loadings ranged from 0.492 to 0.773. Internal consistency reliability calculated with the Cronbach alphacoefficient was found to be 0.943. The test-retest reliability coefficient between the two administrations with a two-week interval wasfound as 0.772.Conclusion: The findings of the study showed that the newly developed Family Functioning Questionnaire in Rehabilitation met thecriteria for examining the role of families of children with special needs in rehabilitation programs and had adequate psychometricproperties.

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1. McPherson M, Arango P, Fox H, Lauver C, McManus M et al. A new definition of children with special health care needs. Pediatrics 1998; 102 (1): 137-140.
2. Brown FL, Whittingham K, Sofronoff K, Boyd RN. Parenting a child with a traumatic brain injury: Experiences of parents and health professionals. Brain Injury 2013; 27 (13-14): 1570-1582. doi: 10.3109/02699052.2013.841996
3. Feizi A, Najmi B, Salesi A, Chorami M, Hoveidafar R. Parenting stress among mothers of children with different physical, mental and psychological problems. Journal of Research in Medical Sciences 2014; 19 (2): 145-152.
4. Weisleder P. Family interventions to prevent maltreatment of children with disabilities. Journal of Child Neurology 2011; 26 (8), 1052-1053. doi: 10.1177/0883073811413279
5. Nicolson A, Moir L, Millsteed J. Impact of assistive technology on family caregivers of children with physical disabilities: A systematic review. Disability and Rehabilitation: Assistive Technology 2012; 7 (5): 345-349. doi: 10.3109/17483107.2012.667194
6. King S, Teplicky R, King G, Rosenbaum P. Family-centered service for children with cerebral palsy and their families: A review of the literature. Seminars in Pediatric Neurology 2004; 11 (1): 78-86. doi: 10.1016/j.spen.2004.01.009
7. King G, King S, Rosenbaum P, Goffin R. Family-centered caregiving and well-being of parents of children with disabilities: linking process with outcome. Journal of Pediatric Psychology 1999; 24 (1): 41-53. doi: 10.1093/jpepsy/24.1.41
8. Nacshen JS. Empowerment and families: Building bridges between parents and professionals, theory and research. Journal on Development Disabilities 2004; 11 (1): 67-76.
9. An M, Palisano RJ. Family-professional collaboration in pediatric rehabilitation: a practice model. Disability and Rehabilitation 2014; 36 (5): 434-440. doi: 10.3109/09638288.2013.797510
10. World Health Organization. International Classification of Functioning, Disability and Health: ICF. Geneva, Switzerland: World Health Organization; 2001.
11. Mpofu E, Levers LL, Mpofu K, Tanui P, Hossain ZS. Family assessments in rehabilitation service provision. In: Milligton MJ, Marini I (editors). Families in Rehabilitation Counseling: A Community-based Rehabilitation Approach. New York, NY, USA: Springer Publishing Company; 2014. pp. 251-266.
12. Järvikoski A, Martin M, Autti-Rämö I, Härkäpää, K. Shared agency and collaboration between the family and professionals in medical rehabilitation of children with severe disabilities. International Journal of Rehabilitation Research 2013; 36 (1): 30-37. doi: 10.1097/MRR.0b013e32835692d3
13. Schmidt LJ, Garrat AM, Fitzpatrick R. Child/parent-assessed population health outcome measures: a structured review. Child: Care, Health and Development 2002; 28 (3): 227-237. doi: 10.1046/j.1365-2214.2002.00266.x
14. Fiedler CR, Simpson RL, Clark DM. Parents and Families of Children with Disabilities: Effective School-Based Support Services. Upper Saddle River, NJ, USA: Pearson Merrill Prentice Hall; 2007.
15. Kulhthau K, Bloom S, Van Cleave J, Knapp A, Romm D et al. Evidence for family-centered care for children with special health care needs: a systematic review. Academic Pediatrics 2011; 11 (2): 136-143. doi: 10.1016/j.acap.2010.12.014
16. Curley MA, Hunsberger M, Harris SK. Psychometric evaluation of the family-centered care scale for pediatric acute care nursing. Nursing Research 2013; 62 (3): 160-168. doi: 10.1097/NNR.0b013e318286d64b
17. Fingerhut PE. Life Participation for Parents: A tool for family-centered occupational therapy. American Journal of Occupational Therapy 2013; 67 (1): 37-44. doi: 10.5014/ ajot.2013.005082
18. Dai L, Wang L. Review of family functioning. Open Journal of Social Sciences 2015; 3 (12): 134-141. doi: 10.4236/ jss.2015.312014
19. Stein RE, Riessman CK. The development of an Impact-onFamily Scale: Preliminary findings. Med Care 1980; 18 (4):465- 472. doi: 10.1097/00005650-198004000-00010
20. Boyd CP, Gullone E, Needleman GL, Burt T. The Family Environment Scale: Reliability and normative data for an adolescent sample. Family Process 1997; 36(4): 369-373. doi: 10.1111/j.1545-5300.1997.00369.x
21. Creswell JW, Clark VLP. Designing and Conducting Mixed Methods Research. Thousand Oaks, CA, USA: Sage Publications; 2007.
22. Lawshe CH. A quantitative approach to content validity. Personnel Psychology 1975; 28 (4): 563-575. doi: 10.1111/ j.1744-6570.1975.tb01393.x
23. Alpar, R. Spor, Sağlık ve Eğitim Bilimlerinden Örneklerle Uygulamalı İstatistik ve Geçerlik-Güvenirlik, SPSS’de Çözümleme Adımlarıyla Birlikte. 2 Baskı. Ankara, Turkey: Detay Yayıncılık; 2012 (in Turkish).
24. Hung JW, Wu YH, Chiang YC, Wu WC, Yeh CH. Mental health of parents having children with physical disabilities. Chang Gung Medical Journal 2010; 33 (1): 82-91.
25. Piskur B, Beurskens AJ, Jongmans MJ, Ketelaar M, Norton M et al. Parents’ actions, challenges, and needs while enabling participation of children with a physical disability: a scoping review. BMC Pediatrics 2012; 12: 177-189. doi: 10.1186/1471- 2431-12-177
26. Wiart L, Ray L, Darrah J, Magill-Evans J. Parents’ perspectives on occupational therapy and physical therapy goals for children with cerebral palsy. Disability and Rehabilitation 2010; 32 (3): 248-258. doi: 10.3109/09638280903095890
27. King G, Cathers T, King S, Rosenbaum P. Major elements of parents’ satisfaction and dissatisfaction with pediatric rehabilitation services. Children’s Health Care 2001; 30 (2): 111-134.
28. Penticuff JH, Arheart KL. Effectiveness of an intervention to improve parent–professional collaboration in neonatal intensive care. Journal of Perinatal & Neonatal Nursing 2005; 19 (2): 187-202.
29. Pyke-Grimm KA, Stewart JL, Kelly KP, Degner LF. Parents of children with cancer: factors influencing their treatment decision making roles. Journal of Pediatric Nursing 2006; 21 (5): 350-361. doi: 10.1016/j.pedn.2006.02.005
30. Fiks AG, Hughes CC, Gafen A, Guevara JP, Barg FK. Contrasting parents’ and pediatricians’ perspectives on shared decision-making in ADHD. Pediatrics 2011; 127 (1): 188-196. doi: 10.1542/peds.2010-1510
31. Mohsin MN, Khan TM, Doger AH, Awan AS. Role of parents in training of children with Intellectual Disability. International Journal of Humanities and Social Science 2011; 1 (9): 78-84.
32. Tarini BA, Christakis DA, Lozano P. Toward family-centered inpatient medical care: the role of parents as participants in medical decisions. Journal of Pediatrics 2007; 151 (6): 690-695. doi: 10.1016/j.jpeds.2007.05.022
33. Young B, Moffett JK, Jackson D, McNulty A. Decision-making in community-based paediatric physiotherapy: a qualitative study of children, parents and practitioners. Health Social Care in the Community 2006; 14 (2): 116-124. doi: 10.1111/j.1365- 2524.2006.00599.x