Palyatif bakımda psikososyal yaklaşım ve değerlendirme

Palyatif bakımda psikososyal yaklaşım ve değerlendirme

Dünya genelinde kronik hastalıkların artması ve nüfusun yaşlanması palyatif bakıma olan gereksinimi artırmıştır. Palyatif bakım multidisipliner olarak yürütülmesi gereken, hasta ve yakınlarını derinden etkileyen bir süreçtir. Psikososyal faktörler ilerlemiş hastalığı olan bireylerde iyi oluşluğun önemli bir belirleyicisidir. Bu dönemde hasta ve yakınlarında depresyon, anksiyete ve sosyal iletişimde kopukluklar gibi psikososyal semptomlar görülebilmektedir. Yaşam kalitesini artırmak için hasta ve yakınlarının psikososyal gereksinimleri iyi analiz edilmelidir. Hasta kaybı sonrasındaki yas döneminde de profesyonel desteğe devam edilmesi önemlidir.
Keywords:

Palyatif bakım,

___

  • 1. WHO National cancer control programmes, policies and managerial guidelines. 2nd Edition. 2002. 2. Makary M, Daniel M. Medical error-the third leading cause of death in the US. BMJ 2016; 353: i2139. 3. Elçigil A. Palyatif bakım hemşireliği. Gülhane Tıp Derg 2012; 54: 329-34. 4. WHO, International Agency for Research on Cancer. Latest global cancer data 2018. 5. Kitici B. Palyatif bakım ünitelerinde uygulanan müzik terapi çalışmaları üzerine bir araştırma. AKÜ AMADER 2018; 8: 64-89. 6. Griffiths J, Ewing G, Rogers M. ‘‘Moving swiftly on.” Psychological support provided by district nurses to patients with palliative care needs. Cancer Nurs 2010; 33: 390-7. 7. Hudson PL, Remedios C, Thomas K. A systematic review of psychosocial interventions for family carers of palliative care patients. BMC Palliative Care 2010; 9: 17. 8. Götze H, Brähler E, Gansera L, Schnabel A, Gottschalk-Fleischer A, Köhler N. Anxiety, depression and quality of life in family caregivers of palliative cancer patients during home care and after the patient’s death. Eur J Cancer Care 2016; 1-8. 9. Merckaert I, LibertL, Y, Messin S, Milani M, Slachmuylde JL, Razavi D. Cancer patients’ desire for psychological support: prevalence and implications for screening patients’ psychological needs. Psychooncology 2010; 19: 141-9. 10. Baker-Glenn EA, Park B, Granger L, Symonds P, Mitchell AJ. Desire for psychological support in cancer patients with depression or distress: validation of a simple help question. Psychooncology 2011; 20: 525-31. 11. Agnew A, Manktelow R, Taylor BJ, Jones L. Bereavement needs assessment in specialist palliative care: a review of the literatüre. Palliative Med 2010; 24: 46-59. 12. Dix O, Myer G. Feeling better: psychosocial care in specialist palliative care; a discussion paper London: National Council for Hospice and Specialist Palliative Care Services 1997. 13. Ulrichová M. Existential analysis and logo therapy on a good way to die. J Palliat Care Med 2018; 8: 1000330. 14. Kocaman N. Konsültasyon liyezon psikiyatrisi hemşireliği ve genel hastanede psikososyal bakım. Turkiye Klinikleri J Int Med Sci 2006; 2: 97-107. 15. Kang KA. Models for spiritual care in hospice and palliative care. Korean J Hosp Palliat Care 2018; 21: 41-50. 16. Irwin SA, Rao S, Bower K, et al. Psychiatric issues in palliative care: recognition of depression in patients enrolled in hospice care. J Pall Med 2008; 11: 156-63. 17. Kim Y, Carver CS, Rocha-Lima C, Shaffer KM. Depressive symptoms among caregivers of colorectal cancer patients during the first year since diagnosis: a longitudinal investigation. Psychooncology 2013; 22: 362-7. 18. Torun N. Palliative care experiences of the patient family. Cukurova Med J 2019; 44: 358-65. 19. Onyeka T. Psychosocial issues in palliative care: a review of five cases. Indian Journal of Palliative Care 2010; 16: 123-8. 20. Rego F, Pereira C, Rego G, Nunes R. The psychological and spiritual dimentions of palliative care: a descriptive systematic review. Neuropsychiatry (London) 2018; 8: 484-94. 21. Puchalski C, Ferrell B, Virani R, et al. Improving the quality of spiritual care as a dimension of palliative care: The report of the consensus conference. J Palliat Med 2009; 12: 885-904. 22. Taylor A, Box M. Multicultural palliative care guidelines, Palliative Care Australia 1999. 23. Dedeli Ö, Yıldız E, Yüksel Ş. Assessing the spiritual needs and practices of oncology patients in Turkey. Holistic Nursing Practice 2015; 29: 103-13. 24. Hui D, de la Cruz M, Thorney S, Parsons HA, Delgado-Guay M & Bruera E. The frequency and correlates of spiritual distress among patients with advanced cancer admitted to an acute palliative care unit. Am J Hosp Palliat Care 2010; 28: 264-70. 25. Bölüktaş RP. Palyatif bakım hastalarında manevi bakım. Çekmece İZÜ Sosyal Bilimler Dergisi 2018; 13: 51-72. 26. Vesel T, Dave S. Music therapy and palliative care: systematic review. J Pain and Symptom Manage 2018; 56: e74. 27. Karslı N. Manevi bakımı destekleyici bir uygulama: müzik terapi. Hiti Üniversitesi İlahiyat Fakültesi Dergisi 2019; 18: 259-86. 28. Pommeret S, Chrusciel J, Verlaine C, et al. Music in palliative care: a qualitative study with patients suffering from cancer. BMC Palliative Care 2019; 18: 78. 29. Gutgsell KJ, Schluchter M, Margevicius S, et al. Music therapy reduces pain in palliative care patients: a randomized controlled trial. J Pain and Symptom Manage 2013; 45: 822-31. 30. Gallagher LM, Lagman R, Rybicki L. Outcomes of music therapy interventions on symptom management in palliative medicine patients. Am J Hosp Palliat Care 2018; 35: 250-7. 31. Hudson P, Remedios C, Zordan R, et al. Guidelines for the psychosocial and bereavement support of family caregivers of palliative care patients. Journal of Palliative Medicine 2012; 15: 696-702. 32. Miyajima K, Fujisawa D, Yoshimura K, et al. Association between quality of end-of-life care and possible complicated grief among bereaved family members. Journal of Palliative Medicine 2014; 17: 1025-31. 33. Newson RS, Boelen PA, Hek K, Hofman A, Tiemeier H. The prevalence and characteristics of complicated grief in older adults. J Affect Disord 2011; 132: 231-8. 34. Kang J, Shin DW, Choi JE, et al. Factors associated with positive consequences of serving as a family caregiver for a terminal cancer patient. Psychooncology 2013; 22: 564-71. 35. Breen LJ, Aoun SM, O’Connor M, Rumbold B. Bridging the gaps in palliative care bereavement support: an international perspective. Death Studies 2014; 38: 54-61. 36. Otuzoğlu M. Kanser hastalarının manevi gereksinimlerini değerlendirmeye ilişkin ölçek çalışmalarının incelemesi. J Contemp Med 2020; 10: 138-45. 37. Almada AL, Casquinha P, Heitod dos Santos MJ, Caixeiro A. The potantial role of psychosocial rehabilitation in palliative care. J R Coll Physicians Edinb 2018; 48: 311-7.