Pınar ORTAN, Aslı AKIN, Feyza DEMİRALIN, Aka Ulu TRAKYALI, Reha BİLGİN, Esra ARPACI, Muhteşem GEDİZLİOĞLU

NÖROLOJİK HASTALIĞI OLMAYAN BİR GRUPTA KRONİK NÖROLOJİK HASTALIKLAR HAKKINDA FARKINDALIĞIN ARAŞTIRILMASI: KESİTSEL BİR ANKET ÇALIŞMASI

Kronik hastalıklar hakkında farkındalık ve bilgilenme, erken tanı ve düzenli takip ile uzun vadedeki olumsuz sonuçların önlenmesinde ilk basamağı oluşturur. Bu çalışmada epilepsi, Parkinson hastalığı ve multipl sklerozun nörolojik hastalığı olmayan bir grupta ne denli tanındığı, bilgi düzeyinin yeterli olup olmadığı, yanlış bilgi ve inanışların ne düzeyde olduğu bir anket çalışması ile araştırıldı. Genel hastane ortamından rastgele alınan, 109’u kadın olan 18-85 yaş arası 230 bireye hastalığı tanıyıp tanımadıkları ve tanıyorlarsa neler bildikleri soruldu. Epilepsi oldukça iyi tanınan bir hastalıkken Parkinson hastalığı grubun yaklaşık yarısı, multipl skleroz 1/3’ü tarafından duyulmuştu. Bu bireylerin hastalık hakkında doğru bilgi sahibi olma oranları epilepsi ve multipl skleroz için %30’un altında, Parkinson hastalığı için ise % 80 bulundu. Anketi yanıtlayanlar en çok sağlık çalışanları ya da TV’den bilgilendiklerini ifade etmişlerdi. Anket grubunda en çok dikkati çeken bireylerin hastalıklar hakkında bilgili olduklarını düşünmelerine karşın birçok konuda kararsızlık ifade etmeleriydi. Sonuç olarak kronik nörolojik hastalıklar hakkında toplumsal bilgilendirme kampanyalarının artarak sürmesinin gerekli olduğu kanaatine varılmıştır

Anahtar Kelimeler:

Farkındalık, hastalık bilgisi, tutum, epilepsi, multipl skleroz, Parkinson hastalığı

THE EVALUATION OF AWARENESS OF CHRONIC NEUROLOGICAL DISEASES IN A GROUP WITHOUT ANY NEUROLOGICAL CONDITION: A CROSS-SECTIONAL QUESTIONNAIRE-BASED SURVEY

Awareness and sufficient knowledge of chronic diseases constitute the first step for preventing the long term consequences with early diagnosis and intervention in addition to regular followups. In this study the awareness and level of knowledge, wrong information or beliefs about epilepsy, Parkinson’s disease and multiple sclerosis were evaluated in a group of subjects without any neurological condition by means of a semi-structured hundred thirty persons randomly picked in a general hospital ward, were inquired on whether they were familiar with these diseases, and if they do what they knew. They were 18-85 years of age and 109 were females. Epilepsy was a quite wellknown disease while Parkinson’s disease was heard by only the half and multiple sclerosis one third. The level of sufficient knowledge was less than 30% for epilepsy and multiple sclerosis, however 80% for Parkinson’s disease. The respondents declared to possess knowledge professionals or TV. The most intriguing point was the high level of uncertainty of the respondents although they felt themselves sufficiently informed. Conclusively the informative campaigns on chronic neurological diseases must increasingly survive in order to achieve a better disease management

Keywords:

Awareness, knowledge of disease, attitude, epilepsy, multiple sclerosis, Parkinson’s disease,

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Yazının alınma tarihi: 01.03.2014 Kabül tarihi: 21.04.2014 Online basım:24.04.2014