11916

Demans Hastalarına Bakım Verenlerin Öz Yeterliliği, Yaşam Kalitesi ve Bakım Yükü

Amaç: Bu çalışma, Alzheimer tipi demans hastalarına bakım veren bireylerin öz yeterlilik düzeyleri ile yaşam kalitesi ve bakım yükü arasındaki ilişkiyi belirlemek amacıyla yapılmıştır. Yöntem: Bu tanımlayıcı çalışmanın örneklemini Alzheimer tipi demanslı hastalara bakım veren 145 birey oluşturmuştur. Veriler “Hasta Bakım Veren Tanıtım Formu”, “Öz Yeterlilik Ölçeği”, “SF-36 Yaşam Kalitesi Ölçeği”, “Bakıcı Yükü Ölçeği” ve “Barthel İndeksi” kullanılarak toplanmıştır. Bulgular: Bakım verenler 53.34±11 yaş ortalamasında %77.9'u kadın, %35.9'u üniversite mezunu, %74.5'i evlidir. Çalışmada bakım verenlerin Öz Yeterlik Ölçeği ile Bakım Veren Yükü Ölçeği ve SF-36 Yaşam Kalitesi Ölçeği puan ortalamaları arasında negatif yönde anlamlı bir ilişki bulunmuştur (p

Anahtar Kelimeler:

Demans-Alzheimer Tipi, Bakım Veren, Bakım Yükü, Yaşama Kalitesi, Öz Yeterlilik.

Self-Efficacy, Quality of Life and Care Burden in Caregivers of Patients with Dementia

Purpose: This study aimed to determine the relationship between self-efficacy, quality of life, and care burden in caregivers of patient with dementia. Method: In a descriptive study, 145 individuals who cared for patients with dementia of the Alzheimer's type were participated. The data were collected using “Patient Caregiver Presentation Form”, “Self-Efficacy Scale”, “SF-36 Quality of Life Scale”, “Caregiver Burden Scale”, and “Barthel Index”. Results: The caregivers were 77.9% female, 35.9% university graduate, 74.5% married, with an average age of 53.34±11 years. Our results found a significant negative correlation among the mean scores of the self-efficacy and the care burden of the caregivers (p

Keywords:

Dementia-Alzheimer Type, Caregiver, Care Burden, Quality of Life, Self Efficacy.,

PDF

___

Abdollahpour, I., Nedjat, S., Salimi, Y. & Noroozian, M. (2015). Which variable is the strongest adjusted predictor of quality of life in caregivers of patients with dementia? Psychogeriatrics, 15(1), 51-57. https://doi.org/10.1111/psyg.12094
Akyar, İ. & Akdemir, N. (2009). Alzheimer hastalarına bakım verenlerin yaşadıkları güçlükler. Hacettepe Üniversitesi Sağlık Bilimleri Fakültesi Hemşirelik Dergisi, 16(3), 32-49. https://dergipark.org.tr/en/download/article-file/88532
Andreakou, M. I., Papadopoulos, A. A., Panagiotakos, D. B. & Niakas, D. (2016). Assessment of health-related quality of life for caregivers of Alzheimer’s disease patients. International Journal of Alzheimer's Disease, 9213968. https://doi.org/10.1155/2016/9213968
Au, A., Lau, K. M., Sit, E., Cheung, G., Lai, M. K., Wong, S. A. & Fok, D. (2010). The role of self-efficacy in the Alzheimer's family caregiver stress process: a partial mediator between physical health and depressive symptoms. Clinical Gerontologists, 33(4), 298-315. https://doi.org/10.1080/07317115.2010.502817
Buhse, M. (2008). Assessment of caregiver burden in families of persons with multiple sclerosis. Journal of Neuroscience Nursing, 40(1), 25-31. https://journals.lww.com/jnnonline/Fulltext/2008/02000/Assessment_of_Caregiver_Burden_in_Families_of.5.aspx?casa_token=c42Olv8rPoUAAAAA:AAJ9rRiRY_VGBwo6hogf9Vr3nFcYy4CJb4ldf4TVvF-L205QWvoG0VpJLXzF7agtuPHY9Wo1R4ILL_KfbEl91yAqz
Canonici, A. P., Andrade, L. P. D., Gobbi, S., Santos‐Galduroz, R. F., Gobbi, L. T. B. & Stella, F. (2012). Functional dependence and caregiver burden in Alzheimer's disease: A controlled trial on the benefits of motor intervention. Psychogeriatrics, 12(3), 186-192. https://doi.org/10.1111/j.1479-8301.2012.00407.x
Cheng, S. T., Lam, L. C., Kwok, T. & Siu Siu, Ng. N. (2013). Self-efficacy is associated with less burden and more gains from behavioral problems of Alzheimer’s disease in Hong Kong Chinese caregivers. Gerontologist, 53(1), 71-80. https://doi.org/10.1093/geront/gns062
Crellin, N. E., Orrell, M., McDermott, O. & Charlesworth, G. (2014). Self-efficacy and health-related quality of life in family carers of people with dementia: A systematic review. Aging & Mental Health, 18(8), 954-969. https://doi.org/10.1080/13607863.2014.915921
Du, J., Shao, S., Jin G. H., Xu, W. & Lu, X. Q. (2017). Factors associated with health-related quality of life among family caregivers of disabled older adults: a cross-sectional study from Beijing. Medicine (Baltimore), 96(44), e8489. https://doi.org/10.1097/MD.0000000000008489
Ertekin, A., Demir, R., Özdemir, G., Özel, L., Özyıldırım, E. & Ulvi, H. (2015). An investigation of the risk factors and prevalence of Alzheimer’s disease in the eastern region of Turkey: A population based door-to-door survey. European Journal of General Medicine, 12(2), 144-151. https://doi.org/10.15197/sabad.1.12.29
Gallagher, D., Ni Mhaolain, A., Crosbya, L. & Ryan, D. (2011). Self-efficacy for managing dementia may protect against burden and depression in Alzheimer’s caregivers. Aging Mental Health, 15(6), 663-670. https://doi.org/10.1080/13607863.2011.562179
Gözüm, S. & Aksayan, S. (1999). Öz etkililik yeterlik ölçegi'nin Türkçe formunun güvenilirlik ve geçerliliği. Atatürk Üniversitesi Hemşirelik Yüksekokulu Dergisi, 2(1), 21-34. https://dergipark.org.tr/en/download/article-file/29103
Grano, C., Lucidi, F. & Violani, C. (2017). The relationship between caregiving self-efficacy and depressive symptoms in family caregivers of patients with Alzheimer disease: A longitudinal study. International Psychogeriatrics, 29(7), 1095-1103. https://doi.org/10.1017/S1041610217000059
Gündüz Saraç, H. F. (2020). Alzheimer hastalarının fonksiyonel kapasitesinin ve bakım verenin duygusal zekâ düzeyinin bakım verme yükü ile ilişkisi [Yüksek Lisans Tezi, Pamukkale Üniversitesi Sağlık Bilimleri Enstitüsü]. http://acikerisim.pau.edu.tr/xmlui/bitstream/handle/11499/35322/Hatice%20Feyza%20G%c3%9cND%c3%9cZ%20SARA%c3%87-SBE%20%c4%b0UTABD%20YL%20TEZ.pdf?sequence=1&isAllowed=y
İnci, F. H. & Erdem, M. (2008). Bakım verme yükü ölçeği’nin Türkçe’ye uyarlanması geçerlik ve güvenirliği. Atatürk Üniversitesi Hemşirelik Yüksekokul Dergisi, 11(4), 85-95. https://dergipark.org.tr/en/download/article-file/29438
Kang, H. S., Myung, W., Na, D. L., Kim, S. Y., Lee, J. H., Han, S. H., Choi, S. H., Kim, S. Y., Kim, S. & Kim, D. K. (2014). Factors associated with caregiver burden in patients with Alzheimer's disease. Psychiatry Investigation, 11(2), 152-159. https://doi.org/10.4306/pi.2014.11.2.152.
Koçyiğit, H., Aydemir, Ö., Fişek, G. & Ölmez, N. (1999). Kısa Form-36 (SF-36)’nın Türkçe versiyonunun güvenilirliği ve geçerliliği. İlaç ve Tedavi Dergisi, 12(2), 102-106.
Küçükdeveci, A. A., Yavuzer, G., Tennant, A. & Süldür, N. (2000). Adaptation of the modified Barthel Index for use in physical medicine and rehabilitation in Turkey. Sandinavian Journal of Rehabilitation Medicine 32(2), 87-92. https://europepmc.org/article/med/10853723
Landeiro, F., Walsh, K., Ghinai, I., Mughal, S., Nye, E. & Wace, H. et al. (2018). Measuring quality of life of people with predementia and dementia and their caregivers: A systematic review protocol. BMJ Open, 8(3): e019082. https://doi.org/10.1136/bmjopen-2017-019082.
Mahoney, K. & Barthel, M. (1965). Functional evaluation: the Barthel Index. Maryland State Medical Journal, 14(2), 56-6. https://stopstroke.massgeneral.org/pdfs/barthel_reprint.pdf
Martin-Carrasco, M., Martin, M. F., Valero, C. P., Vazquez, ALG. & Vilanova, M. B. (2009). Effectiveness of a psychoeducational ıntervention program in the reduction of caregiver burden in alzheimer's disease patients' caregivers. International Journal of Geriatric Psychiatry, 24(5), 489-499. https://doi.org/10.1002/gps.2142
Özer, S. (2010). Demanslı Hasta ve Bakım Verenlerin Yaşam Kalitesi. Türk Geriatri Dergisi, 13(3), 27-35. http://geriatri.dergisi.org/uploads/pdf/pdf_TJG_511.pdf
Romero-Moreno, R., Losada, A., Mausbach, BT. & Márquez-González, M. (2011). Analysis of the moderating effect of self-efficacy domains in different points of the dementia caregiving process. Aging Ment Health, 15(2), 221-231. https://doi.org/10.1080/13607863.2010.505231
Semiatin, A. M. & O’Connor, M. K. (2012). The relationship between self-efficacy and positive aspects of caregiving in Alzheimer's disease caregivers. Aging Mental Health, 16: 683-688. https://doi.org/10.1080/13607863.2011.651437
Serrano-Aguilar, P. G., Lopez-Bastida, J. & Yanes-Lopez, V. (2006). Impact on health-related quality of life and perceived burden of informal caregivers of individuals with Alzheimer’s disease. Neuroepidemiology, 27(3), 136-142. https://doi.org/10.1159/000095760
Sherer, M. & Maddux, J. (1982). The self efficacy self-efficacyscale: construction and validation. Psychological Reports, 51(2), 663-671. https://doi.org/10.2466/pr0.1982.51.2.663
Srivastava, G., Tripathi, R. K., Tiwari, S. C., Singh, B. & Tripathi, S. M. (2016). Caregiver burden and quality of life of key caregivers of patients with dementia. Indian Journal of Psychological Medicine, 38(2), 133-136. https://doi.org/10.4103/0253-7176.178779
Stuifbergen, A. K., Seraphine, A. & Roberts, G. (2000). An explanotory model of health promotion and quality of life in chronic disabling conditions. Nursing Research, 49(3), 122-129. https://journals.lww.com/nursingresearchonline/Fulltext/2000/05000/An_Explanatory_Model_of_Health_Promotion_and.2.aspx?casa_token=a0enc9R2hyUAAAAA:XhIPia4jFaf2SiyNZ9SHM4TrFp89Ot35u-tf4RUYw1_AHXA9I7Zvia3blFCCMxbHRmVDfglMHZpE8Fx8IaekckZC5rwJ
Şahiner, T. (2012). Alzheimer hastalığında bakım veren yaşam kalitesi ve sorunları. Türkiye Klinikleri Journal of Neurology Special Topics, 5(3), 91-93. https://www.turkiyeklinikleri.com/article/en-alzheimer-hastaliginda-bakimveren-yasam-kalitesi-ve-sorunlari-63946.html
Tay, K. C., Seow, C. C., Xiao, C., Lee, H. M., Chiu, H. F. & Cihan, S. W. (2016). Structured interviews examining the burden, coping, self-efficacy and quality of life among family caregivers of persons with dementia in Singapore. Dementia, 15(2), 204-220. https://pubmed.ncbi.nlm.nih.gov/24535819/
Republic of Turkey Ministry of Health General Directorate of Health Information Systems (2021). Health statistics yearbook 2019. (https://sbsgm.saglik.gov.tr/Eklenti/40564/0/saglik-istatistikleri-yilligi-2019pdf.pdf)
Unver, V., Basak, T., Tosun, N., Aslan, O. & Akbayrak, N. (2016). Care burden and self-efficacy levels of family caregivers of elderly people in Turkey. Holistic Nursing Practice, 30(3), 166-173. https://doi.org/10.1097/HNP.0000000000000148
Ware, J. E. & Sherbourne, C. D. (1992). The MOS 36-item short form health survey (SF-36). I: conceptual framework and item selection. Medical Care, 30(6), 473-483. https://pubmed.ncbi.nlm.nih.gov/1593914/
World Health Organization (2021). Dementia. https://www.who.int/news-room/fact-sheets/detail/dementia
Zarit, S. H., Reever, K. E. & Bach-Peterson, J. (1980). Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist, 20(6), 649-655. https://doi.org/10.1093/geront/20.6.649
Zhang, S., Edwards, H., Yates, P., & Li, C. (2014). Self-efficacy partially mediates between social support and health-related quality of life in family caregivers for dementia patients in Shanghai. Dementia and Geriatric Cognitive Disorders, 37(1-2), 34-44. https://doi.org/10.1159/000351865