Annelerin Gözünden Besin Alerjisi Olan Çocuklarının Okul Yaşamındaki Zorluklar: Kelime Bulutu Analizi

Amaç: Bu çalışma annelerin besin alerjisi olan çocuklarının okul yaşamına ilişkin yaşadıkları zorlukların belirlenmesi amacıyla yapılmıştır. Gereç ve Yöntem: Bu kalitatif çalışma, Facebook’ta besin alerjisi olan çocukların annelerinin dahil olduğu grupların kapsamlı taramasıyla yürütülmüştür. Annelerin dahil olduğu Facebook grupları Şubat-Mart 2022 tarihleri arasında iki bağımsız araştırmacı tarafından “Okul’ ve “Kreş” anahtar kelimeleriyle taranmıştır. Gönderiler modifiye edilmiş tematik analizi için, açık ve eksenel kodlama yöntemleri ile analiz edilmiştir. Bulgular: Çalışmada 3 ana, 7 alt tema belirlenmiştir. Bunlar; “Annelerde bakım yükü” (Alt temalar: duygusal yük, fiziksel yük ve sosyal yük), “Okul süreci” (Alt temalar: okul ile işbirliği, okul yönetimi ve velilerle çatışma, epinefrin otoenjektörünün uygulanması ve okulda sağlık personeli talebi) ve “Sürecin yönetimine ilişkin tavsiyeler”dir. Çalışmada annelerin çocuklarının besin alerjisi ile ilgili katıldıkları Facebook gruplarındaki gönderilerinde; bakım yükü yaşadıkları, okul sürecinde bazı sorunlar yaşadıkları ve gruplardaki diğer annelerden okul sürecinin yönetimine ilişkin tavsiyeler istedikleri bulunmuştur. Sonuç: Besin alerjisi olan çocukların annelerinin bakım yüklerinin azaltılması ve çocuklarının okul sürecinin sağlıklı sürdürülmesi için, bu çocukların okullarda okul sağlığı hemşiresi tarafından yakından takip edilmesi ve okul sağlığı politikalarının geliştirilmesi önerilmektedir.

Anahtar Kelimeler:

Anneler, gıda alerjisi, okul hemşireliği

Difficulties in the School Life of Children with a Food Allergy from a Mother’s Perspective: Word Cloud Analysis

Objective: This study was carried out to determine the difficulties experienced by the mothers of children with food allergies regarding their children’s school life. Material and Methods: This qualitative study was performed by extensive screening of groups on Facebook that included mothers of children with food allergies. Facebook groups including mothers were searched by two independent researchers between January-February 2022 with the keywords “School” and “Kindergarten”. Posts were analyzed for a modified thematic analysis using open and axial coding methods. Results: In the study, three main themes and seven sub-themes were determined. These were as follows: “Care burden for mothers” (Subthemes: emotional burden, physical burden, and social burden), “School process” (Subthemes: cooperation with the school, conflict with the school administration and parents, the application of penepine and the demand for health personnel in the school) and “Advice on the management of the process”. In the study, it was found that mothers experienced a burden of care, had some problems in the school process, and asked other mothers in the groups for advice on the management of the school process. Conclusion: To reduce the care burden of mothers of children with chronic health problems such as food allergies and to maintain a healthy school process, it is recommended that these children are followed closely by school nurses at schools and school health policies should be developed.

Keywords:

Food allergy, mothers, school nursing,

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1. Loh W, Tang ML. The epidemiology of food allergy in the global context. Environ Res Public Health 2018;15(9):2043. google scholar
2. Frachette C, Fina A, Fontas E, ve ark. Health‐related quality of life of food‐allergic children compared with healthy controls and other diseases. Pediatr Allergy Immunol 2021;33(1):e13663. google scholar
3. Waserman S, Cruickshank H, Hildebrand KJ, ve ark. Prevention and management of allergic reactions to food in child care centers and schools: Practice guidelines. J Allergy Clin Immunol 2021;147(5):1561-1578. google scholar
4. White MV, Hogue SL, Bennett ME., ve ark. EpiPen4Schools pilot survey: Occurrence of anaphylaxis, triggers, and epinephrine administration in a US school setting. Allergy Asthma Proc 2015;36(4):306-312. google scholar
5. Mustafa SS, Russell AF, Kagan O, ve ark. Parent perspectives on school food allergy policy. BMC Pediatr 2018;18(1):1-11. google scholar
6. Ercan H, Özen A, Karatepe H, Berber M, Cengizlier R. Primary school teachers’ knowledge about and attitudes toward anaphylaxis. Pediatr Allergy Immunol2012;23:428-432. google scholar
7. Wahl A, Stephens H, Ruffo M, Jones AL. The evaluation of a food allergy and epinephrine autoinjector training program for personnel who care for children in schools and community settings. J Sch Nurs 2015;31(2):91-98. google scholar
8. Tsuang A, Demain H, Patrick K, Pistiner M, Wang J. Epinephrine use and training in schools for food-induced anaphylaxis among nonnursing staff. Journal Allergy Clin Immunol Pract 2017;5(5):1418- 1420. google scholar
9. Hogue SL, Muniz R, Herrem C, Silvia S, White MV. Barriers to the administration of epinephrine in schools. J Sch Health 2018;88(5):396-404. google scholar
10. Dupuis R, Kinsey EW, Spergel JM, ve ark. Food allergy management at school. J Sch Health 2020;90(5):395-406. google scholar
11. Valentine AZ, Knibb RC. Exploring quality of life in families of children living with and without a severe food allergy. Appetite. 2011;57(2):467-474. google scholar
12. Çınar S, Boztepe H. The use of social media among parents of infants with cleft lip and/or palate. J Pediatr Nurs 2020;54: e91-e96. google scholar
13. Corbin J, Strauss A. Basics of qualitative research: Techniques and procedures for developing grounded theory, (3. baskı). Thousand Oaks: Sage Publications Inc; 2008. google scholar
14. Bradley, EH, Curry LA, Devers K.J. Qualitative data analysis for health services research: Developing taxonomy, themes, and theory. Health Serv Res 2007;42(4):1758-1772. google
scholar
15. Sever GN, Buzlu MÖ. Turizm fakülteleri bünyesindeki rekreasyon programları için müfredat kapsamı önerisi: Bilimetrik bir çalışma. Çukurova Üniversitesi Sosyal Bilimler Enstitüsü Dergisi. 2015; 24(2): 381-395. google scholar
16. Cicutto L, Julien B, Li NY, et al. Comparing school environments with and without legislation for the prevention and management of anaphylaxis. Allergy. 2012;67(1):131-137. google scholar
17. DeSantiago-Cardenas L, Rivkina V, Whyte SA, Harvey-Gintoft BC, Bunning BJ, Gupta RS. Emergency epinephrine use for food allergy reactions in Chicago public schools. Am J Prev Med. 2015;48(2):170-173. google scholar
18. Gupta RS, Rivkina V, DeSantiago-Cardenas L, Smith B, Harvey- Gintoft B, Whyte SA. Asthma and food allergy management in Chicago public schools. Pediatrics. 2014;134(4):729-736. google scholar
19. Zadikoff EH, Whyte SA, Desantiago-Cardenas L, Harvey- Gintoft B, Gupta RS. The development and implementation of the Chicago public schools emergency EpiPen(R) policy. J Sch Health. 2014;84(5):342-347. google scholar
20. Stjerna ML. Food, risk and place: Agency and negotiations of young people with food allergy. Sociol Health Illn. 2015;37(2):284-297. google scholar
21. Gupta RS, Springston EE, Smith B, et al. Food allergy knowledge, attitudes, and beliefs of parents with foodallergic children in the United States. Pediatr Allergy Immunol. 2010; 21(6): 927-934 google scholar
22. Kourosh A, Nsobundu CK, Khosla R, et al. The effects of school staff food allergy education in a large urban school district. Health Behavior and Policy Review. 2020;7(3):238-247. google scholar
23. Vollmer RL, Girsch V, Foster JS. A qualitative investigation of parent and child perceptions of school food allergypolicies in the United States. J Sch Health. 2022; 92: 185- 193. google scholar
24. Warren CM, Gupta RS, SohnMW, et al. Differences in empowerment and quality of life among parents of children with food allergy. Ann Allergyb Asthma Immunol. 2015;114(2):117-125. google scholar
25. Sanagavarapu P, Said M, Katelaris C, Wainstein B. Transition to school anxiety for mothers of children with food allergy: Implications for educators. Australasian Journal of Early Childhood. 2016:41(4):115-22. google scholar
26. Külhaş Çelik İK, Büyüktiryaki B, Civelek E, Kocabaş CN. Internet use habits of parents with children suffering from food allergy. Asthma Allergy Immunol 2019;17(3):134-9. google scholar
27. Moorhead SA, Hazlett DE, Harrison L, Carroll JK, Irwin A, Hoving C. A new dimension of health care: Systematic review of the uses, benefits, and limitations of social media for health communication. J Med Internet Res 2013;15(4):e85. google scholar