Şebnem AVCI, Merve TAŞCİ, Akmer MUTLU

7320

Serebral Palsili Çocukların Fonksiyonel Seviyeleri ve Ekstremite Dağılımlarının Ebeveynlik Stres Düzeyine Etkileri

Amaç: Bu çalışmanın amacı, Serebral Palsili çocukların fonksiyonel seviyeleri ve ektremite dağılımlarının ebeveynlik stres düzeyine etkilerinin incelenmesidir. Gereç ve Yöntem: Araştırmaya 4-12 yaş arası, 73 spastik serebral palsili çocuk ve ebeveynleri dahil edildi. Çocuklar Kaba Motor Sınıflama Sistemi, El Becerileri Sınıflandırma Sistemi, İletişim Becerileri Sınıflandırma Sistemi ile değerlendirildi. Çocukların klinik özellikleri ve eşlik eden problemler hastane dosyalarından alındı. IQ’ları International Classification of Diseas-10’a göre değerlendirildi. Ebeveynlere Ebeveyn Stres İndeksi Kısa Formu uygulandı. Sonuçlar: Annelerin stres düzeyi ile çocukların ekstremite dağılımı, fonksiyonel değerlendirme sonuçları, annenin yaşı arasında anlamlı fark bulundu (p˂0.05). Anneler ile babalar arasındaki stres düzeyi arasında anlamlı fark bulundu (p˂0.05). Eğitim seviyesi, bakıcı desteği ve medeni duruma bağlı olarak fark bulunmadı (p>0.05). Tartışma: Spastik serebral palsili çocuğa sahip annelerin ebeveynlik stres düzeyleri çocukların fonksiyonel seviyelerinden ve ekstremite dağılımlarından etkilenmektedir. Rehabilitasyonun başarısı ailelerle kurulmuş başarılı bir ortaklığa dayandığından serebral palsili çocukların rehabilitasyonunda ebeveyn stresine dikkat çekilmesi önemlidir.
Anahtar Kelimeler:

serebral palsi, ebeveyn stresi, fonksiyonel seviye, ekstremite dağılımı

The Effects of Functional Levels and Extremity Distributions of Children with Cerebral Palsy on Parenting Stress Level

Purpose: The aim of this study is to investigate the effects of functional levels and extremity distributions of children with Cerebral Palsy on parental stress levels. Material and Methods: The study included 73 children with spastic cerebral palsy between the ages of 4-12 years and their parents. Gross Motor Classification System, Hand Skills Classification System, Communication Skills Classification System were used to evaluate children. The clinical features and accompanying problems of children were taken from the hospital files. IQs were evaluated according to International Classification of Diseas-10. Parents' Stress Index Short Form was applied to the parents. Results: A significant difference was found between the stress level of the mothers and the child's extremity distribution, functional evaluation results and age of mothers (p˂0.05). A significant difference was found between the level of stress between mothers and fathers (p˂0.05). No significant difference was found depending on education level, caregiver support and marital status (p> 0.05). Conclusions: Parenting stress levels of mothers with children with spastic cerebral palsy are affected by the functional levels of the children and the extremity distributions. Since the success of rehabilitation is based on a successful partnership with families, it is important to draw attention to parental stress in the rehabilitation of children with cerebral palsy.
Keywords:

cerebral palsy, parental stress, extremity distribution, functional level,

PDF

___

  • 1. Anonymous. (2002). Prevalence and characteristics of children with cerebral palsy in Europe. Developmental Medicine and Child Neurology, 44: 633-640.
  • 2. Bax M, Goldstein M, Rosenbaum P, Leviton A, Paneth N, Dan B et al. (2005). Proposed definition and classification of cerebral palsy. Developmental Medicine and Child Neurology, 47: 571-576.
  • 3. Beckung A, Hagberg G. (2002). Neuroimpairments, activity limitations, and participation restrictions in children with cerebral palsy. Developmental Medicine and Child Neurology, 44: 309-316.
  • 4. Cans C. (2000). Surveillance of cerebral paly in Europe (SCEP): A collaboration of cerebral palsy surveys and registers. Dev Med Child Neurol, 42 :816-24.
  • 5. Carnahan KD, Arner M, Hagglund G. (2007). Association between gross motor function (GMFCS) and manual ability (MACS) in children with cerebral palsy. A population-based study of 359 children. BMC Musculoskeletal Disorders, 8: 50-57.
  • 6. Coşkun Y, Akkaş G. (2009). Engelli çocuğu olan annelerin sürekli kaygı düzeyleri ile sosyal destek algıları arasındaki ilişki. Ahi Evran Üniversitesi Kırşehir Eğitim Fakültesi Dergisi, 10: 213-227.
  • 7. Çetinkaya Z, Öz F. (2000). Serebral palsili çocuğu olan ailelerin bilgi gereksinimlerinin karşılanmasında planlı bilgi vermenin etkisi. C.Ü. Hemşirelik Yüksekokulu Dergisi, 4(2): 44-51.
  • 8. Dagenais L, Hall N, Majnemer A, Birnbaum R, Dumas F, Gosselin J et al. (2006). Communicating a diagnosis of cerebral palsy: caregiver satisfaction and stress. Pediatric Neurology, 35: 408-414.
  • 9. Dereli F, Okur S. (2000). Engelli çocuğa sahip olan ailelerin depresyon durumunun belirlenmesi. Yeni Tıp Dergisi, 25: 164-168.
  • 10. Edebol-Tysk K. (1989). Epidemiology of spastic tetraplegic cerebral palsy in Sweden. I. Impairments and disabilities. Neuropediatrics, 20(1): 41-5.
  • 11. Eliasson AC, Krumlinde Sundholm L, Rösblad B, Beckung E, Arner M, Öhrvall AM, Rosenbaum P. (2006). The Manual Ability Classification System (MACS) for children with cerebral palsy: scale developmentand evidence of validity and reliability. Developmental Medicine and Child Neurology, 48: 549-554.
  • 12. Erkin G, Ünsal-Delialioglu S, Özel S, Culha C, Sirzai H. (2008). Risk factors and clinical profiles in Turkish children with cerebral palsy: analysis of 625 cases. Int J Rehabil Res, 31: 89-91.
  • 13. Gülaldı D. (2010). Erken çocuklukta serebral palsi’li ve otistik çocuk annelerinin ebeveyn stres yaşam doyumlarıyla ilişkisinin incelenmesi. Yüksek Lisans Tezi, Maltepe Üniversitesi Sosyal Bilimler Enstitüsü, İstanbul, 122s.
  • 14. Hidecker MJC, Paneth N, Rosenbaum PL, Kent RD, Lillie J, Eulenberg JB et al. (2011). Developing and validating the Communication Function Classification System (CFCS) for individuals with cerebral palsy. Developmental Medicine and Child Neurology, 53: 704-710.
  • 15. Hidecker MJ, Thi HN, Dodge N, Hurvitz EA, Slaughter J, Workinger MS et al. (2012). Inter relationships of functional status in cerebral palsy: analyzing gross motor function, manual ability, and communication function classification systems in children. Developmental Medicine and Child Neurology, 54: 737-742.
  • 16. Himmelmann K, Lindh K, Hidecker MJC. (2013). Communication ability in cerebral palsy: A study from the CP register of western Sweden. European Journal of Paediatric Neurology, 17: 568-574.
  • 17. Hüner B, Özgüzel MH, Telli H, Sarı G. (2011). Polikliniğimize başvuran serebral palsi hastalarının demografik ve klinik özellikleri. Okmeydanı Tıp Dergisi, 27(1): 28-32.
  • 18. Kerem-Günel M, Mutlu A, Tarsuslu T, Livanelioğlu A. (2009). Relationship among the Manual Ability Classification System (MACS), the Gross Motor Function Classification System (GMFCS), and the functional status (WeeFIM) in children with spastic cerebral palsy. Eur J Pediatr, 168: 477-485.
  • 19. Metin EN. (2012). Özel Gereksinimli Çocuğun Aileye Katılımı. Metin EN (Ed). Özel Gereksinimli Çocuklar, 1. Baskı, Ankara: Maya Akademi Yayınevi, 11-28.
  • 20. Minciu I. (2012). Clinical correlations in cerebral palsy. A Journal of Clinical Medicine, 4(7): 319-324.
  • 21. Mongan D, Dunne K, O’Nuallin S, Gaffney G. (2006). Prevalence of cerebral palsy in the West of Ireland 1990–1999. Developmental Medicine and Child Neurology, 48: 892-895.
  • 22. Mowder BA, Shamah R. (2009). Parent Assessment and Intervention. Mowder BA, Rubinson F, Yasik AE (Eds). Evidence-Based Practice in Infant and Early Childhood Psychology, 1st Ed, New Jersey, 207-236.
  • 23. Murphy N, Caplin DA, Christian BJ, Luther BL, Holobkov R, Young PC. (2011). The function of parents and their children with cerebral palsy. Phys Med Rehabil, 3: 98-104.
  • 24. Mutlu A, Akmeşe P, Kerem-Günel M. (2010). Değişik özür seviyesindeki çocukların annelerinin depresyon düzeyleri farklı mıdır? Yeni Tıp Dergisi, 27: 87-92.
  • 25. Odding E, Roebroeck ME, Stam HJ. (2006). The epidemiology of cerebral palsy: incidence, impairments and risk factors. Disabil Rehabil, 28: 183-91.
  • 26. Öcal-Eriman E. (2009). Serebral palsili çocukların motor ve fonksiyonellik seviyeleri ile yaşam kalitelerinin karşılaştırılması. Tıpta Uzmanlık Tezi, Göztepe Eğitim ve Araştırma Hastanesi, İstanbul, 116s.
  • 27. Palisano R, Rosenbaum P, Walter S, Russel D, Wood E, Galuppi B. (1997). Development and reliability of a system to classify gross motor function in children with cerebral palsy. Developmental Medicine and Child Neurology, 39: 214-223.
  • 28. Park MS, Chung CY, Lee KM, Sung KH, Choi IH, Kim TW. (2012). Parenting stress in parents of children with cerebral palsy and its association with physical function. Journal of Pediatric Orthopaedics, 21: 452-456.
  • 29. Parkes J, Caravele B, Marcelli M, Franco F, Colver A. (2011). Parenting stress and children with cerebral palsy: a European cross-sectional survey. Developmental Medicine and Child Neurology, 53: 815-821.
  • 30. Parkes J, Hill N, Platt MJ, Donnelly C. (2010). Oromotor dysfunction and communication impairments in children with cerebral palsy: a register study. Developmental Medicine and Child Neurology, 52: 1113-1119.
  • 31. Peker F. (2007). Serebral palsili çocuğa sahip ailelerde algılanan sosyal desteğin anne babaların depresyon düzeyi ile ilişkisi., Yüksek Lisans Tezi, Ankara Üniversitesi Sağlık Bilimleri Enstitüsü, Ankara, 101s.
  • 32. Rassafiani M, Kahjoogh MA, Hosseini A, Sahaf R. (2012). Time use in mothers of children with cerebral palsy: a comparison study. Hong Kong Journal of Occupational Therapy, 22: 70-74.
  • 33. Reitman D, Currier CO, Stickle TR. (2002). A critical evaluation of the Parenting Stress Index–Short Form (PSI–SF) in a head start population. Journal of Clinical Child and Adolescent Psychology, 31(3): 384-392.
  • 34. Sellier E, Uldall P, Calado E, Sigurdardottir S, Torrioli MG, Cans C. (2012). Epilepsy and cerebral palsy: Characteristics and trends in children born in 1976-1998. European Journal of Paediatric Neurology, 16: 48-55.
  • 35. Serdaroğlu A, Cansu A, Özkan S, Tezcan S. (2006). Prevalence of cerebral palsy in Turkish children between the age of 2 and 16 years. Developmental Medicine and Child Neurology, 48: 413-6.
  • 36. Sipal RF, Schuengel C, Voorman JM, Eck MV, Becher JG. (2009). Course of behaviour problems of children with cerebral palsy: the role of parental stress and support. Child Care, Health Dev, 36(1): 74-84.
  • 37. Smith TB, Oliver MNI, Innocenti MS. (2001). Parenting stress in families of children with disabilities. American Journal of Orthopsychiatry, 71(2): 257-261.
  • 38. Wang HY, Jong YJ. (2004). Parental stres and related factors in parents of children with cerebral palsy. Kaohsiung J Med Sci, 20: 334-40.
  • 39. Wannamaker CE, Glenwick DS. (1998). Stress, coping and perceptions of child behaviour in parents of preschoolers with cerebral palsy. Rehabil Psychol, 43: 297-312.
  • 40. Zaidman-Zait A, Mirenda P, Zumbo BD, Wellington S, DuaV, Kalynchuk K. (2010). An item response theory analysis of the Parenting Stress Index-Short Form with parents of children with autism spectrum disorders. Journal of Child Psychology and Psychiatry, 51(11): 1269-1277.
Aydın Sağlık Dergisi-Cover
  • ISSN: 2149-5769
  • Yayın Aralığı: Yılda 3 Sayı
  • Başlangıç: 2015
  • Yayıncı: İstanbul Aydın Üniversitesi
Arşiv
Sayıdaki Diğer Makaleler

Serebral Palsili Çocukların Fonksiyonel Seviyeleri ve Ekstremite Dağılımlarının Ebeveynlik Stres Düzeyine Etkileri

Şebnem AVCI, Merve TAŞCİ, Akmer MUTLU

Ergenlik Dönemindeki Çocuğa Sahip Ebeveynlerin Yaşadıkları Sorunlar

Tuğçe AYBAK, Melek İPEK

Covid-19 Salgını İçin Aşı Çalışmaları İncelemesi

Zeynep YALNIZ, Özer AKGÜL

TÜRKİYE’DE HEMŞİRE GÜÇLENDİRME ARAŞTIRMALARI: BİBLİYOMETRİK VE İÇERİK ANALİZİ

Hande YEŞİLBAŞ, Filiz KANTEK

Predispozan Sebebi Bulunmayan Hamman Sendromu Gelişen Genç Kadın Olgu

Candan GÜNGÖR, Fatih ERDEM, Cenk BALTA, Emrah AKAY, Gülen DEMİRPOLAT