Tülay ŞİMŞEK TARSUSLU, AYŞE LİVANELİOĞLU

Serebral paralizili bireylerde ağrının aktivite bağımsızlığı ve sağlıkla ilgili yaşam kalitesi üzerine etkisi

Amaç: Bu çalışmanın amacı, serebral paralizili (SP) bireylerde ağrının aktivite bağımsızlığı ve sağlıkla ilgili yaşam kalitesi (HRQoL) üzerine etkisini incelemektir. Gereç ve Yöntem: Çalışmaya yaş ortalaması 22.18±7.77 yıl olan 15 yaş ve üstü 50 SP’li birey dahil edilmiştir. Çalışmaya dahil edilen bireylerin demografik bilgileri alındıktan sonra ağrıyı değerlendirmek için Vizüel Analog Skalası (VAS), günlük yaşam aktivite bağımsızlığı Fonksiyonel Bağımsızlık Ölçümü (FIM), sağlıkla ilgili yaşam kalitesi ise Nottingham Sağlık Profili (NHP) ile değerlendirilmiştir. Ayrıca, ağrının zamanla değişimi, ağrının yürüme fonksiyonunu ve günlük aktiviteleri ne kadar kısıtladığı sorgulanmıştır. Bulgular: Ağrı prevelansı %36 olarak bulunmuştur. Ağrı lokalizasyonu bel, kalça, omuz ve alt ekstremite ağrısı şeklinde belirlenmiştir. Ağrı şiddeti şu anda hissedilen ağrı ortalaması 4±2.02, en az hissedilen 2.88±1.77, ortalama hissedilen 4.77±1.55 ve en şiddetli hissedilen ortalama ağrı şiddeti 6.88±2.02 olarak belirlenmiştir. Bireyler ağrının yürüme fonksiyonunda (6.55±3.27) ve günlük aktivitelerde orta derecede (5.22±2.55) kısıtlılıklara yol açtığını ifade etmişlerdir. Ağrısı olan ve olmayan bireylerde NHP’nin enerji seviyesi ve toplam NHP değerleri arasında anlamlı bir fark bulunmuştur (p0.05). Sonuç: Ağrının SP’li bireylerde günlük aktiviteleri ve yürümeyi hafiften şiddetli dereceye varan yoğunlukta etkilediği, bunun da bireylerin HRQoL’ni etkilediği bulunmuştur. SP’li bireylerde ağrının belirlenmesi ve tedavisine yönelik yaklaşımların aktivite katılımı ve HRQoL’ni arttıracağını düşünüyoruz.

The effect of pain on activity independence and health -related quality of life in cerebral palsied individuals

Objectives: The aim of this study was to determine the effect of pain on activity independence and health-related quality of life (HRQoL) in cerebral palsied (CP) individuals. Methods: Individuals with CP aged 15 and above 50 with an average age of 22.18±7.77 years were included in the study. After obtaining demographic information of the individuals who joined the study, Visual Analogue Scale (VAS), Functional Independence Measurement (FIM) and Nottingham Health Profile (NHP) were used for the evaluation of pain, daily living activity and HRQoL, respectively. Changes in pain with time and the limiting magnitude of pain in ambulation and daily activities were also questioned. Results: Pain prevalence was found as 36%. Pain localization was determined in the lower back, hip, shoulder, and lower extremity. Average pain magnitude was determined as: current (4±2.02), minimal (2.88±1.77), moderate (4.77±1.55), or intense (6.88±2.02) pain. Individuals stated that the pain limited their ambulation (6.55±3.27) and daily activities (5.22±2.55) moderately. A significant difference was found among the energy level of the NHP and total NHP in individuals with pain versus those having no pain (p<0.05); there was no significant difference between the sub-parameters of FIM and total FIM (p>0.05). Conclusion: Pain was found to affect daily activities and ambulation ranging in degree from mild to severe, leading to an effect on HRQoL of the individuals with CP. We suggest that approaches oriented to the determination and treatment of pain in CP individuals will increase activity participation and HRQoL.

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