Ercan KAYDOK, Sezin SOLUM, Nesibe Sultan CİNAROGLU

Comparison of the caregiver burden of the mothers of children with cerebral palsy and healthy children

The study aims to compare caregiver burden levels of mothers of children with cerebral palsy (CP) to mothers with healthy children. Methods: Participants comprised 40 mothers of children with CP (Group 1), and controls comprised 40 mothers with healthy children(Group 2). Caregiver burden inventory (CBI), hospital anxiety depression scale (HADS) were applied. The functional status of children with CP was evaluated by the Gross Motor Function Classification System (GMFCS). Secondary problems accompanying CP were also noted. Results: A secondary problem was seen in 75% of children with CP. The caregiver burden (CB) and the frequency of depression among Group 1 mothers were significantly higher than Group 2 mothers (p

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1. Zarit SH. Family care and burden at the end of life. CMAJ. 2004; 8;170:1811–2.

2. Atagün Mİ, Balaban ÖD, Atagün Z, ve ark. Kronik Hastalıklarda Bakım Veren Yükü. Psikiyatride Güncel Yaklaşımlar. 2014;6:513–52.

3. Ozlu A, Yildiz M, Aker TA. Reliability and validity study on the zarit caregiver burden scale. Arch Neuropsychiatry. 2009;46 Supp.:38-42.

4. Zarit SH, Reever KE, Bach-Peterson J. Relatives of the impaired elderly: correlates of feelings of burden. Gerontologist. 1980;20:649-55.

5. Sarı HY. Zihinsel engelli çocuğu olan ailelerde aile yüklenmesi. C.Ü Hem Yüksekokulu Der. 2007;11:1-7.

6. Dökmen ZY, Yakınlarına bakım verenlerin ruh sağlıkları ile sosyal destek algıları arasındaki ilişkiler. Ankara Üniversitesi Sosyal Bilimler Enstitüsü Derg. 2012;3:3-38.

7. Kasuya RT, Polgar-Bailey P, Takeuchi R. Caregiver burden and burnout. Postgraduate Medicine. 2000;108:119-23.

8. Bergström AL, Eriksson G, von Koch L, Tham K. Combined life satisfaction of persons with stroke and their caregivers: associations with caregiver burden and the impact of stroke. Health Qual Life Outcomes. 2011;11:1.

9. Yakut A. Serebral Palsi. In: Aysun S , editor. Çocuk Nöroloji(Turkish). Ankara: Alp Ofset Matbaacılık Makine Sanayi ve Ticaret Ltd Şti. 2006:420–65.10.

10. Bax M., Goldstein M., Rosenbaum P., Leviton A., Paneth N., Dan B., Jacobsson B., Damiano D., Proposed Definition and Classification of Cerebral Palsy. Developmental Medicine and Child Neurology. 2005; 47:571-6.

11. Rosen MG, Dickinson JC. The incidence of cerebral palsy. Am J Obstet Gynecol. 1992;167:417–23.

12. Serdaroğlu A, Cansu A, Ozkan S, et al. Prevalence of cerebral palsy in Turkish children between the ages of 2 and 16 years. Dev Med Child Neurol. 2006;48:413–6.

13. Ones K, Yilmaz E, Cetinkaya B, Caglar N. Assessment of the quality of life of mothers of children with cerebral palsy (primary caregivers). Neurorehabil Neural Repair. 2005;19:232–7.

14. Morris C, Kurinczuk JJ, Fitzpatrick R. Child or family assessed measures of activity performance and participation for children with cerebral palsy: a structured review. Child Care Health Dev. 2005;31:397–407.

15. Erkin G, Aybay C, Kurt M, et al. The assessment of functional status in Turkish children with cerebral palsy (a preliminary study). Child Care Health Dev. 2005;31:719–25.

16. Liptak GS, Accardo PJ. Health and social outcomes of children with cerebral palsy. J Pediatr. 2004;145(2 Suppl):S36-41.

17. Erdoğanoğlu Y, Kerem Günel M. Serebral paralizili çocukların ailelerinin sağlıkla ilgili yaşam kalitelerinin araştırılması. Toplum Hekimliği Bülteni. 2007;26:35–9.

18. Mutch L, Alberman E, Hagberg B, et al. Cerebral palsy epidemiology: where are we now and where are we going? Dev Med Child Neurol. 1992;34:547–51.

19. Jahnsen R, Aamodt G, Rosenbaum P. Gross Motor Function Classification System used in adults with cerebral palsy: agreement of self-reported versus professional rating. Dev Med Child Neurol. 2006;48:734.

20. McCormick A, Brien M, Plourde J, et al. Stability of the gross motor function classification system in adults with cerebral palsy. Dev Med Child Neurol. 2007;49:265–9.

21. Novak M, Guest C. Application of a Multidimensional caregiver burden inventory. The Gerontologist. 1989;1;29:798–803.

22. Küçükgüçlü Ö, Esen A, Yener G. The Reliability and Validity of The Caregiver Burden Inventory in Turkey, J Neurol Sci. 2009;26:60-73.

23. Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67:361–70.

24. Aydemir O. Hastane anksiyete ve depresyon ölcegi Türkçe formunun geçerlilik ve güvenilirliği. Turk Psikiyatri Derg. 1997;8:187–280.

25. Andersen GL, Irgens LM, Haagaas I. Cerebral palsy in Norway: prevalence, subtypes and severity. Eur J Paediatr Neurol. 2008;12:4–13.

26. Raina P, O’Donnell M, Rosenbaum P, et al. The health and well-being of caregivers of children with cerebral palsy. Pediatrics. 2005;115:e626–36.

27. Yilmaz H, Erkin G, Izki AA. Quality of life in mothers of children with cerebral palsy. ISRN Rehabilitation. 2013(2013):1–5.

28. Novak I, McIntyre S, Morgan C. A systematic review of interventions for children with cerebral palsy: state of the evidence. Dev Med Child Neurol. 2013;55:885–910.

29. Aydın R, Nur H. Family-centered approach in the management of children with cerebral palsy. Turk J Phys Med Rehab. 2012;58:229–35.

30. Yilmaz H, Erkin G, Nalbant L. Depression and anxiety levels in mothers of children with cerebral palsy: a controlled study. Eur J Phys Rehabil Med. 2013;49:823–7.

31. Özsoy SA, Özkahraman Ş, Çallı F. Zihinsel engelli çocuk sahibi ailelerin yaşadıkları güçlüklerin incelenmesi. Aile ve Toplum Dergisi. 2006;3:69-77.

32. Fisman S, Wolf L. The handicapped child: psychological effects of parental, marital, and sibling relationships. Psychiatr Clin North Am. 1991;14:199-217.

33. Karahan AY, Islam SA. Comparative study on caregiver burden of caregivers to physically disabled, pediatric and geriatric patients. J Marmara Univ Inst Health Sci. 2013;3:1–7.

34. Basaran A, Karadavut K, Uneri S, et al. The effect of having a children with cerebral palsy on quality of life, burn-out, depression and anxiety scores: a comparative study. Eur J Phys Rehabil Med. 2013;49:815–22.

35. Parisi L, Ruberto M, Precenzano F, et al. The quality of life in children with cerebral palsy. Acta Medica Mediterranea. 2016;5:1665–70.

36. Glinac A, Matović L, Delalić A, Mešalić L. Quality of Life in Mothers of Children with Cerebral Palsy. Acta clinica Croatica. 2017;56:299–307

37. Wijesinghe CJ, Cunningham N, Fonseka P, et al. Factors associated with caregiver burden among caregivers of children with cerebral palsy in Sri Lanka. Asia Pac J Public Health. 2015;27:85–95.

38. Bemister TB, Brooks BL, Dyck RH, et al. Parent and family impact of raising a child with perinatal stroke. BMC pediatrics. 2014;14:182.