Barış UZUNOK, Ender SALBAŞ, Kaan ÖZPAZARCIK, Burçin ÇOBANOĞLU, Simge KAYNAR, Nil DEMİRCAN, Cavit YAZGAN, Alper YILDIRIM

COVID-19 Pandemisinde Kapanma ve Kısıtlamaların Etkileri: Ankilozan Spondilit Hastalarının Bakış Açıları ve Deneyimleri.

AMAÇ: COVID-19 pandemisi 2 yıldır dünyamızı ve tüm insanları etkiliyor ve literatürde yayınlanmış birçok çalışmaya konu olmuştur. Bu çalışmaların ortak sonucu, pandeminin insanların stres düzeylerini arttırdığı ve ayrıca birçok makalenin pandeminin kronik hastalıkları olanlar gibi özel hasta popülasyonları üzerindeki olumsuz etkisini bildirmesidir ancak Türkiye'de pandemik kısıtlamaların romatizmal hastalığı olan hastalar üzerindeki etkilerini ortaya koyan hiçbir klinik çalışma bulunmamaktadır. Çalışmamız, karantinanın ve COVID-19 pandemisi sırasında uygulanan kısıtlamaların Ankilozan Spondilitli hastalar üzerindeki etkilerini değerlendirmeyi amaçlamaktadır. GEREÇ VE YÖNTEM: Bu çalışma 18-65 yaş arası ankilozan spondilitli hastalar ile Türkiye'nin UŞAK ilinde gerçekleştirildi. Ayrıntılı bir literatür taramasından sonra 35 soruluk bir anket hazırlandı. Bu anket, egzersiz ve beslenme durumu gibi COVID-19 kısıtlama döneminde hastaların tedavi rutinlerini ve alışkanlıklarını belirlemeyi amaçladı. Aynı zamanda, kapatma ve kısıtlama süresinin hastaların ruh sağlığı üzerindeki etkileri araştırıldı.Bu dönemde doktorların ve hastaların ilaçlarının mevcudiyeti sorgulandı. BULGULAR: Tüm katılımcılar kapanmanın bir etkisi olduğunu bildirdi. Hastaların %43.7'si karantina öncesine göre daha az egzersiz seviyesi bildirdi. Bu hastalar, medya tavsiyesi esas olarak daha fazla C vitamini (65.7) tüketti. Ancak uzman tavsiyesine rağmen bazı hastalar daha fazla alkol tüketmiştir (%21,4). Hastaların %78'i kısıtlama altında uyku-uyanıklık ritimlerinin belirgin şekilde değiştiğini ve hastaların çoğunluğunun takip için bir romatologa gidemediğini bildirdi. SONUÇ: Ankolizan spondilit hastalarının çoğunluğu kapanma döneminde uzmanlara veya doktorlara danışmadı, ancak hastaların çoğu hastalık aktivitesini kontrol etmek için ilaçlarına devam etti. Hastaların %78'i kısıtlama altında uyku-uyanıklık ritimlerinin belirgin şekilde değiştiğini ve hastaların çoğu takip için bir romatologa gidemediğini bildirdi. Aynı zamanda, kapatma( kapanma) ve kısıtlama süresinin hastaların ruh sağlığı üzerindeki etkileri araştırıldı.

Anahtar Kelimeler:

Egzersiz, Romatizmal Hastalık, Depresyon, Beslenme

The Effects of Lockdowns and Restrictions During the COVID-19 Pandemic: Perspectives and Experiences From Ankylosing Spondylitis patients.

OBJECTIVE: The COVID-19 pandemic has been affecting our world and all people for 2 years and It has been the subject of many studies that have been published in the literature. Common result of these studies is that the pandemic has increased people's stress levels and also many papers report the negative impact of the pandemic on private patient populations, such as those with chronic diseases, but there are no clinical studies in Turkey that have revealed the effects of pandemic restrictions on patients with rheumatic diseases yet. Our study aims to evaluate the effects of quarantine and restrictions imposed during the COVID-19 pandemic on patients with Ankylosing Spondylitis. METHOD: This study was carried out in the USAK province of Turkey with patients with ankylosing spondylitis aged 18-65 years. After a detailed literature review, a 35-question questionnaire was prepared. This survey was aimed at determining the treatment routines and habits of patients during the COVID-19 restriction period, such as exercise and nutritional status. At the same time, the effects of the closure and restriction period on the mental health of patients were investigated.During this period, the availability of doctors and medicines of patients was questioned. RESULTS: All participants reported an impact of lockdown. 43.7% reported lesser exercising levels than before the lockdown. These patients mainly consumed more vitamin C (65.7), as media advice for the public. However, despite specialist advice, some patients consumed more alcohol (21.4%). 78% of the patients reported sleep-wake rhythms markedly changed under restriction and the majority of patients could not go to a rheumatologist for follow-up. CONCLUSION: The majority of the AS did not consult specialists or physicians during the lockdown period but most of them continued their medications to control the disease activity.

Keywords:

Exercise, Rheumatic Diseases, Depression, Nutrition,

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