Objective: In this study, physical, psychological effects and quality of life of caregivers of patients with brain injury due to stroke or trauma were evaluated; and the difference between the family members as caregivers and the paid caregivers were highlighted. Material and Methods: Fifty-four caregivers of patients were included in this cross-sectional study. Caregivers were grouped as relative group (n=43) and self-employed/employed group (n=11). Main characteristics of caregivers and patients were recorded. All caregivers completed Hospital Anxiety and Depression Scale (HADS) and Short Form-36 (SF-36) questionnaires. Results: There was a statistically significant difference between the groups with regard to caregiving duration. In self-employed/employed group, patients were significantly older than another group (p
Amaç: Bu çalışmada inme veya travmaya bağlı beyin hasarlı hastaların bakıcılarının fiziksel, psikolojik etkilenimleri ve yaşam kalitesi düzeyleri değerlendirilerek; etkilenim düzeyinde aileden biri olan bakıcılarla ücret karşılığı bakıcılık yapanlar arasındaki fark vurgulanmıştır. Gereç ve Yöntemler: Kesitsel olarak planlanan bu çalışmaya 54 hasta bakıcısı dahil edildi. Bakıcılar, akraba grubu (n=43) ve paralı bakıcılar (n=11) olarak iki gruba ayrıldı. Bakıcı ve hastaların temel karakteristik özellikleri kaydedildi. Tüm bakıcılar Hastane Anksiyete ve Depresyon Ölçeği (HADS) ile Kısa Form-36 (SF-36) anketini doldurdu. Bulgular: Bakım süresi açısından gruplar arasında istatistiksel olarak anlamlı fark vardı. Paralı bakıcı grubunda, hasta yaşı diğer gruptaki hasta yaşından anlamlı olarak daha fazlaydı (p
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Çevikol A, Çakıcı A. İnme rehabilitasyonu. Oğuz H (editör). Tıbbi Rehabilitasyon. 3. Baskı, Ankara: Nobel Tıp Kitabevi, 2015, p.419-48.
Alaca R, Yaşar E. Travmatik beyin hasarında rehabilitasyon. Oğuz H (editör). Tıbbi Rehabilitasyon. 3. Baskı, Ankara: Nobel Tıp Kitabevi, 2015, p.419-48.
Kratz AL, Sander AM, Brickell TA, et al. Traumatic brain injury caregivers: a qualitative analysis of spouse and parent perspectives on quality of life. Neuropsychol Rehabil. 2017;27:16-37. [Crossref] [PubMed] [PMC]
Em S, Bozkurt M, Caglayan M, et al. Psychological health of caregivers and association with functional status of stroke patients. Top Stroke Rehabil. 2017;24:323-9. [Crossref] [PubMed]
Hunt D, Smith JA. The personal experience of carers of strok survivors: an interpretative phenomenological analysis. Disabil Rehabil. 2004;26:1000-11. [Crossref] [PubMed]
Ware JE, Kosinski M, Keller JL. SF-36 Physical and Mental Health Summary Scales: A User’s Manual. 5th ed. Boston, MA: The Health Institute, 1994. p.188.
Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67:361-70. [Crossref] [PubMed]
Mitchell AJ, Meader N, Symonds P. Diagnostic validity of the Hospital Anxiety and Depression Scale (HADS) in cancer and palliative settings: a meta-analysis. J Affect Disord. 2010;126:335-48. [Crossref] [PubMed]
Aşiret GD, Kapucu S. Burden of caregivers of stroke patients. Turk J Neurol. 2013;19:5-10. [Crossref]
Greenwood N, Mackenzie A, Cloud GC, et al. Informal carers of stroke survivors--factors influencing carers: a systematic review of quantitative studies. Disabil Rehabil. 2008;30: 1329-49. [Crossref] [PubMed]
Gündüz B, Erhan B. Quality of life of stroke patients’ spouses living in the community in Turkey: controlled study with short form-36 questionnaire. Journal of Neurological Sciences. 2008;25:226-34.
Visser-Meily A, Post M, Gorter JW, et al. Rehabilitation of stroke patients needs a familycentered approach. Disabil Rehabil. 2006;28:1557-61. [Crossref] [PubMed]
Anderson CS, Linton J, Stewart-Wynne EG. A population-based assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke. 1995;26:843-9. [Crossref] [PubMed]
Wilz G, Kalytta T. Anxiety symptoms in spouses of stroke patients. Cerebrovasc Dis. 2008;25:311-5. [Crossref] [PubMed]
Hung JW, Huang YC, Chen JH, et al. Factors associated with strain in informal caregivers of stroke patients. Chang Gung Med J. 2012;35:392-401. [Crossref] [PubMed]
Jaracz K, Grabowska-Fudala B, Kozubski W. Caregiver burden after stroke: towards a structural model. Neurol Neurochir Pol. 2012;46:224-32. [Crossref] [PubMed]
Forsberg-Wärleby G, Möller A, Blomstrand C. Spouses of first-ever stroke patients: psychological well-beinig in the first phase after stroke. Stroke. 2001;32:1646-51. [Crossref] [PubMed]
Van Puymbroeck M, Rittman MR. Quality-oflife predictors for caregivers at 1 and 6 months poststroke: results of path analyses. J Rehabil Res Dev. 2005;42:747-60. [Crossref] [PubMed]
Ostwald SK, Bernal MP, Cron SG, et al. Stress experienced by stroke survivors and spousal caregivers during the first year after discharge from inpatient rehabilitation. Top Stroke Rehabil. 2009;16:93-104. [Crossref] [PubMed] [PMC]
Dennis M, O’Rourke S, Lewis S, et al. A quantitative study of the emotional outcome of people caring for stroke survivors. Stroke. 1998;29:1867-72. [Crossref] [PubMed]
Cameron JI, Cheung AM, Streiner DL, et al. Stroke survivor depressive symptoms are associated with family caregiver depression during the first 2 years poststroke. Stroke. 2011;42:302-6. [Crossref] [PubMed]
Clay OJ, Grant JS, Wadley VG, et al. Correlates of health-related quality of life in African American and Caucasian stroke caregivers. Rehabil Psychol. 2013;58:28-35. [Crossref] [PubMed] [PMC]
Morimoto T, Schreiner AS, Asano H. Caregiver burden and healthrelated quality of life among Japanese stroke caregivers. Age Ageing. 2003;32:218-23. [Crossref] [PubMed]
Roth DL, Perkins M, Wadley VG, et al. Family caregiving and emotional strain: associations with quality of life in a large national sample of middle-aged and older adults. Qual Life Res. 2009;18:679-88. [Crossref] [PubMed] [PMC]
McCullagh E, Brigstocke G, Donaldson N, et al. Determinants of caregiving burden and quality of life in caregivers of stroke patients. Stroke. 2005;36:2181-6. [Crossref] [PubMed]