Kanserli ve kronik hastalığı olan çocuklarda yaşam kalitesi

Amaç: Sağlıkla ilişkili yaşam kalitesi (HRQOL) kavramı, çocuklarda kronik hastalıkların yönetiminde ana sonuç ölçütlerinden biridir. Bu yazıda, kanserli ve kronik hastalıklı çocuklarda PedsQL Jenerik Temel Skalası kullanılarak HRQOL'u gözden geçirmeyi amaçladık.Gereç ve Yöntem: Tedavi altındaki tüm kanser hastaları (onkoloji grubu), dikkat eksikliği hiperaktivite bozukluğu (DEHB), tekrarlayan idrar yolu enfeksiyonları gibi nefrolojik bozukluklar ve erken ergenlik ve büyüme geriliği gibi diğer endokrinolojik bozukluklar ve onam veren ebeveynler çalışmaya dahil edildi. Çalışmada PedsQL 4.0 Jenerik Çekirdek Ölçeklerinin Türkçe versiyonu, 8-12 ve 13-18 yaşlarındaki tüm hastalar için kendi kendine ve ebeveyn raporları kullanıldı.Bulgular: Onkoloji grubunda 48, onkolojik olmayan grupta 44 hasta vardı. En sık tanılar onkoloji grubunda lösemi, non-Hodgkin lenfoma ve beyin tümörleri idi. Onkoloji grubunda non-onkoloji grubundaki çocuklara göre okul alt ölçeği ve fiziksel işlev alt ölçeği, psikososyal fonksiyon ve toplam ölçek puanları anlamlı olarak yüksek bulundu. Çocuk öz-bildiriminde yer alan çocukların ve ebeveynlerin sosyal işlevsellik puanları ve anne rapor korelasyonları dışındaki tüm alt ölçekler arasında güçlü pozitif yönde anlamlı bir ilişki bulunmuştur.Sonuç: Kanser, çocukların ve ebeveynlerin tüm yaşam alanlarında işleyişi diğer kronik hastalıklardan daha fazla bozan yıkıcı bir hastalıktır. PedsQL Jenerik Temel Skalası, hem kanser hem de diğer kronik hastalıklarda HRQOL'u değerlendirmek için yararlı bir araçtır.

Anahtar Kelimeler:

Sağlıkla ilişkili yaşam kalitesi, kanser, kronik hastalıklar, çocuklar

Health related quality of life in children with cancer and chronic diseases

Purpose: Health related quality of life (HRQOL) concept is one of the major outcome measures in management of chronic diseases in children. Herein we aimed to review HRQOL by using PedsQL Generic Core Scales in children with cancer and chronic diseases. Materials and Methods: All patients with cancer under treatment (oncology group), attention deficit hyperactivity disorder (ADHD), nephrological disorders like recurrent urinary tract infections and other endocrinologic disorders such as precocious puberty and growth retardation and their parents who gave consent were included in the study. Turkish version of PedsQL 4.0 Generic Core Scales self and parent proxy-reports were used for all patients of 8-12 and 13-18 years of age.Results: There were 48 children in oncology group; 44 in non-oncology group. The most common diagnoses were leukemia, non-Hodgkin lymphoma and brain tumors in the oncology group. Children reported significantly higher scores in the school subscale and physical functioning subscale, psychosocial functioning, and total scale scores in the non-oncology group compared to patients with cancer. A strong positive significant correlation was detected between all subscales except for social functioning scores of children and parents in child self-report and parent proxy-report correlations. Conclusion: Cancer is a devastating disease that impair functioning more than other chronic diseases in all areas of life of children and parents. PedsQL Genereric Core Scales is a usefull tool for evaluating HRQOL in both cancer and other chronic diseases.

Keywords:

Health related quality of life, cancer, chronic diseases, children,

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