Diyabetli Bireylerde Tıbbi Beslenme Tedavisine Uyum Sorunları

Tıbbi beslenme tedavisine uyum çoğu hastanın uyumluluk, kısmen uyumluluk ve uyumsuzluk arasında yer değiştirdiği dinamik bir süreçtir. Sağlık çalışanları çoğu zaman uyum sözcüğünü kullansalar da, doğru terminoloji hakkında çeşitli tartışmalar mevcuttur. Beslenme tedavisine uyumu tanımlamada üç terim kullanılmaktadır. Beslenme tedavisine uyum (compliance) diyetisyenlerin önerilerine hasta davranışlarının ne ölçüde uyduğudur. Diyetisyenlerin talimatlarına riayet etme veya itaat anlamına gelir. Bu terim içerisinde negatif anlamı barındırmaktadır. Zorlama ve utancı kapsar. Beslenme tedavisine bağlı kalma (adherence), diyeisyenlerin hasta veya ailesi tarafından kabul edilmiş önerilerine hasta davranışlarının ne ölçüde uyduğudur. Beslenme tedavisine bağlılık ve sadakati içerir. Yargısal olmayandır. Beslenme tedavisinde ahenkli çalışma ise (concordance) hastanın inançlarına ve alışkanlıklarına saygı gösterecek şekilde, hasta ve diyetisyen arasındaki uzlaşmadan sonra ulaşılan anlaşma olarak tanımlanmıştır. Diyabette beslenme tedavisine uyumu ölçen tek parametre bulunmamaktadır. Diyabetle yaşayan bireylerin öneri ve tedavilerine ölçümü gösteren tanımlamalara gerek vardır. Beslenme tedavisine uyum konusunda hastalar desteklenmeli suçlanmamalı, sağlık çalışanları da uyumu arttırma konusunda eğitilmelidir.

___

1. DiMatteo MR. Variations in patients’ adherence to medical recommendations: a quantitative review of 50 years of research. Med Care. 2004;42(3):200-9.

2. WHO. Adherence to Long Term Therapies: Evidence for Action, Geneva, 2003.

3. MacDonald A, van Rijn M, Feillet F, Lund AM, Bernstein L, Bosch AM, et al. Adherence issues in inherited metabolic disorders treated by low natural protein diets. Ann Nutr Metab 2012;61(4):289-95.

4. García MI, Araya G, Coo S, Waisbren SE, de la Parra A. Treatment adherence during childhood in individuals with phenylketonuria: Early signs of treatment discontinuation. Mol Genet Metab Rep. 2017;11:54-8.

5. Vermeire E, Hearnshaw H, Van Royen P, Denekens J. Patient adherence to treatment: three decades of research. A comprehensive review. J Clin Pharm Ther. 2001;26(5):331-42.

6. MacDonald A, Gokmen-Ozel H, van Rijn M, Burgard P. The reality of dietary compliance in the management of phenylketonuria. J Inherit Metab Dis. 2010;33(6):665-70.

7. Phillips LS, Branch WT, Cook CB, Doyle JP, El-Kebbi IM, Gallina DL, et al. Clinical inertia. Ann Intern Med. 2001;135(9):825-34.

8. Kaya ŞD, Yağcı M. Sağlık çalışanlarının atalet durumlarının hasta güvenliği ile ilişkisi. IJSSE 2015;1(2):453-62.

9. O’Connor PJ, Sperl-Hillen JAM, Johnson PE, Rush WA, Biltz G. Clinical inertia and outpatient medical errors. Adv Pediatr Safety. 2005;2:293-308

10. Parildar H, Cigerli O, Guvener Demirag N. Depression, coping strategies, glycemic control and patient compliance in type 2 diabetic patients in an endocrine outpatient clinic. Pak J Med Sci. 2015;31(1):19-24.

11. Sharman R, Mulgrew K, Katsikitis M. Qualitative analysis of factors affecting adherence to the phenylketonuria diet in adolescents. Clin Nurse Spec. 2013;27(4):205-10.

12. McCrimmon RJ, Ryan CM, Frier BM. Diabetes and cognitive dysfunction. Lancet. 2012;379(9833):2291-9. doi: 10.1016/S0140-6736(12)60360-2.

13. Martin LR, Williams SL, Haskard KB, DiMatteo MR. The challenge of patient adherence. Ther Clin Risk Manag 2005;1(3):189-99.

14. Cypress M. Health literacy and numeracy in diabetes nutrition therapy and self-management education. Franz MJ, Evert AB, editors. ADA Guide to Nutrition Therapy for Diabetes, 2nd Ed. Virginia: American Diabetes Association; 2012. 441 p.

15. Burgard P. Family conditions and dietary control in IEMs. J Inherit Metab Dis. 2007;30(5):629.

16. Olsson GM, Montgomery SM, Alm J. Family conditions and dietary control in phenylketonuria. J Inherit Metab Dis. 2007;30(5):708-715.

17. Alaei M, Asadzadeh-Totonchi G, Gachkar L, Farivar S. Family social status and dietary adherence of patients with phenylketonuria. Iran J Pediatr. 2011;21(3):379–384.

18. Medford E, Hare DJ, Carpenter K, Rust S, Jones S, Wittkowski A. Treatment adherence and psychological wellbeing in maternal carers of children with phenylketonuria. JIMD Rep. 2017;37:107-114.

19. Miller KM, Foster NC, Beck RW, Bergenstal RM, DuBose SN, DiMeglio LA, et al. Current state of type 1 diabetes treatment in the U.S.: updated data from the T1D Exchange clinic registry. Diabetes Care. 2015;38:971-8.

20. Sharman R, Mulgrew K, Katsikitis M. Qualitative analysis of factors affecting adherence to the phenylketonuria diet in adolescents. Clin Nurse Spec. 2013;27(4):205-210.

21. MacDonald A. Diet and compliance in phenylketonuria. Eur J Pediatr. 2000;159 Suppl 2:S136-141.

22. Hearnshaw H, Lindenmeyer A. What do we mean by adherence to treatment and advice for living with diabetes? A review of the literature on definitions and measurements. Diabet Med. 2005;23:720-8.

23. Ten Hoedt AE, Hollak CE, Boelen CC, van der Herberg-van de Wetering NA, Ter Horst NM, Jonkers CF, et al. “MY PKU”: increasing self-management in patients with phenylketonuria. A randomized controlled trial. Orphanet J Rare Dis. 201127;6:48.

24. Casagrande SS, Fradkin JE, Saydah SH, Rust KF, Cowie CC. The prevalence of meeting A1C, blood pressure, and LDL goals among people with diabetes, 1988-2010. Diabetes Care. 2013;36:227-9.

25. Gökşen Şimsek D, Aycan Z, Ozen S, Cetinkaya S, Kara C, Abalı S, et al. Diabetes care, glycemic control, complications, and concomitant autoimmune diseases in children with type 1 diabetes in Turkey: A multicenter study. J Clin Res Pediatr Endocrinol. 2013;5(1):20-6.

26. Durham-Shearer SJ, Judd PA, Whelan K, Thomas JE. Knowledge, compliance and serum phenylalanine concentrations in adolescents and adults with phenylketonuria and the effect of a patient-focused educational resource. J Hum Nutr. Diet 2008;21(5):474-85.

27. Bernstein LE, Helm JR, Rocha JC, Almeida MF, Feillet F, Link RM, et al. Nutrition education tools used in phenylketonuria: clinician, parent and patient perspectives from three international surveys. J Hum Nutr Diet. 2014;27Suppl2:4-11.

28. Tully C, Shneider C, Monaghan M, Hilliard ME, Streisand R. Peer coaching interventions for parents of children with type 1 diabetes. Curr Diab Rep. 2017;17:39-49.

29. Karagüzel G, Bircan I, Erişir S, Bundak R. Metabolic control and educational status in children with type 1 diabetes: effects of a summer camp and intensive insulin treatment. Acta Diabetol. 2005;42:156-61.

30. WHO. Telemedicine. Global Observatory for eHealth series - Volume 2. Geneva, 2010.

31. Bertuzzi F, Stefani I, Rivolta B, Pintaudi B, Meneghini E, Luzi L, et al. Teleconsultation in type 1 diabetes mellitus (TELEDIABE). Acta Diabetol. 2018;55(2):185-92.

32. Powers MA, Bardsley J, Cypress M, Duker P, Funnell MM, Fischl AH, et al. Diabetes self-management education and support in type 2 diabetes: A joint position statement of the American Diabetes Association, the American Association of Diabetes Educators, and the Academy of Nutrition and Dietetics. Diabetes Care. 2015;38:1372-82.

33. Gentile JK, Ten Hoedt AE, Bosch AM. Psychosocial aspects of PKU: hidden disabilities-a review. Mol Genet Metab. 2010;99Suppl 1:S64-67.

34. Akinci B, Tosun P, Bekci E, Yener S, Demir T, Yesil S. Management of gestational diabetes by physicians in Turkey. Prim Care Diabetes 2010;4:173-80.

35. Reader DM. Nutrition therapy for pregnancy, lactation, and diabetes. franz MJ, Evert AB, editors. ADA Guide to Nutrition Therapy for Diabetes, 2nd Ed. Virginia: American Diabetes Association; 2012. 181 p.

36. van Rijn M, Ahring K, Bélanger-Quintana A, Dokoupil K, Ozel HG, Lammardo AMet al. When should social service referral be considered in phenylketonuria? Mol Genet Metab Rep. 2015;2:85-88.

37. Stockler S, Moeslinger D, Herle M, Wimmer B, Ipsiroglu OS. Cultural aspects in the management of inborn errors of metabolism. J Inherit Metab Dis. 2012;35(6):1147-1152.